From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]
This input is dated May 2021 >> View content in Romana In brief Name for organization: Romanian Association of Patients with Hereditary Angioedema – HAE Romania 63 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Ruconest Firazyr Cinryze Fun/interesting facts Traditions and authenticity: In [...]
From Vice-President Ana-Maria Bălțătescu, HAE Romania: The celebration of the 10th anniversary of hae day :-) was a national premiere because for the first time an important building in Târgu-Mureș was lit in purple to celebrate the day and to raise awareness about HAE. The building we choose is the University of Medicine, Pharmacy, [...]
On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]
From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]
By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]
By Natasa Angjeleska, HAEi Regional Patient Advocate South Eastern Europe Before being nominated as HAEi Regional Patient Advocate for the South Eastern Europe countries (SEE), I established communications through my colleagues from HAE Macedonia with some of the HAE patients in this region. We were motivated by the will to meet with patients from neighboring [...]
Yet another country has chosen to have its website under the HAEi umbrella, this time Romania. Have a look at the new website at https://haei.org/romania.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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