From Jovana Cvetković Lazić, President, HAE Serbia Empowering HAE Advocacy: ‘Doctors in Purple’ Project Shines Light on Early Diagnosis In collaboration with esteemed medical professionals, HAE Serbia has recently unveiled the impactful ‘Doctors in Purple’ project. This initiative aims to raise awareness and enhance the understanding of hereditary angioedema (HAE) diagnosis. We extend our [...]
From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]
From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]
From Regional Patient Advocate Natasa Angjeleska In the past couple of months, communication with patient representatives and physicians regarding the Global Leadership Workshop has been going on with high intensity. The support to the patient and physician in Kosovo has continued. HAEi issued a support letter for access to treatment that was sent to [...]
From President Jovana Cvetkovic Lazic, HAE Serbia In order to celebrate hae day :-) 2022, HAE Serbia hosted the first in-person event in two years. This event was organized as a conference, where both HAE specialists and HAE Serbia were able to present. It was covered by all major media outlets in Serbia with [...]
From Regional Patient Advocate Natasa Angjeleska I have had intense communication with the Member Organizations making sure that they were aware of the HAEi newsletter announcing the Global Leadership Workshop in October 2022. In addition, I had continued contact with some of them about the need for translation at the workshop. I’m happy that [...]
From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where we had an opportunity to discuss the situation regarding access to therapies, new initiatives, challenges etc. in the past period. [...]
This input is dated May 2021 >> View content in Srpski In brief Name for organization: HAE Serbia 50 members at 1 Jan 2021 Name of approved HAE treatments: Firazyr Ruconest Berinert Takhzyro Fun/interesting facts Serbia has many unique natural attractions Serbs are very hospitable people Vampire [...]
From Sofija Popovic, HAE Serbia: In commemoration of hae day :-) 2021, HAE Serbia organized multiple happenings. Although we decided to cancel all in-person gatherings for the annual awareness day due to sanitary reasons and restrictions regarding group gatherings, we still found numerous ways to mark the day. HAE Serbia held its General Assembly [...]
On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
