An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics and treatment options.
HAE SLOVENIA Hereditarni Angioedem HAE - Slovenija Slovenia · Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Slovenia. News and events The latest news from HAEi Click here to see [...]
From Regional Patient Advocate Natasa Anglejeska: In Slovenia, there have been some barriers preventing a patient organization specifically for HAE being registered. As a result, the patient representative Teja Iskra is in contact with rare diseases societies and is hoping to have HAE officially supported by one of these organizations. Teja Iskra was also invited [...]