Slovenia

News from Slovenia

2024-01-29T12:09:51+01:00January 29, 2024|Slovenia|

From Teja Iskra, HAE Slovenia After years of struggle and struggle, my family once again helped me so that I could fulfill my dreams. Finally, I can proudly say that the HAE Slovenia Patient Association was officially founded. I’m proud that I finally made it. And now the real work begins. First and foremost, [...]

News from South Eastern Europe

2023-11-10T12:39:01+01:00November 10, 2023|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]

News from South Eastern Europe

2023-06-16T09:44:35+02:00June 19, 2023|Albania, Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, Kosovo, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska Most of the focus at the beginning of the year was on the announcement of the 2023 HAEi Regional Conference EMEA and applications for travel grants for interested participants. We have a relatively large group of participants from South Eastern Europe that have applied for and received travel [...]

News from South Eastern Europe

2022-12-27T13:47:57+01:00December 27, 2022|Albania, Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]

News from South Eastern Europe

2022-10-31T14:00:06+01:00October 31, 2022|Albania, Bosnia-Herzegovina, Europe, HAEi News, Kosovo, Montenegro, North Macedonia, Serbia, Slovenia|

From Regional Patient Advocate Natasa Angjeleska In the past couple of months, communication with patient representatives and physicians regarding the Global Leadership Workshop has been going on with high intensity.  The support to the patient and physician in Kosovo has continued. HAEi issued a support letter for access to treatment that was sent to [...]

10 year achievements – Slovenia

2021-10-11T13:28:57+02:00July 9, 2021|10 year achievements, Europe, Regions, Slovenia|

This input is dated May 2021 >> View content in Slovenščina In brief Name for organization: Association of Patients with HAE Slovenia Members at 1 Jan 2021: We are in our infancy Name of approved HAE treatments: Danazol Ruconest Berinert Firazyr Fun/interesting facts The geographical and climatic [...]

News from South Eastern Europe

2021-07-05T14:49:26+02:00July 5, 2021|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, HAEi News, North Macedonia, Romania, Serbia, Slovenia, Turkey|

On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]

News from South Eastern Europe

2021-04-05T20:09:33+02:00April 5, 2021|Albania, Bosnia-Herzegovina, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Slovenia|

In the course of December 2020 and January 2021, I held online meetings with patient representatives from Montenegro, Greece, Albania and Bosnia and Herzegovina. Some of the patients wanted to hear details about the vaccines for COVID-19 because they feel insecure about the safety of people with HAE. I have re-shared the link to [...]

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

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