Slovenia

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

2019 HAEi Regional Workshop South Eastern Europe

2020-01-03T13:42:20+02:00December 30, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]

News from Slovenia

2019-10-12T16:16:09+02:00October 12, 2019|Slovenia|

An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics and treatment options.

News from Slovenia

2019-10-11T22:57:15+02:00October 11, 2019|Slovenia|

The HAE International map has another big national update – this time seven HAE knowledgeable hospitals in Slovenia. Have a look at https://haei.org/haemember-countries/slovenia.

Slovenia

2020-03-06T09:37:10+02:00February 14, 2019|

HAE SLOVENIA Hereditarni Angioedem HAE - Slovenija Slovenia  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Slovenia. HAE online in Slovenia Visit our website [...]

News from Slovenia

2019-07-16T21:36:12+02:00March 16, 2018|Slovenia|

From Regional Patient Advocate Natasa Anglejeska: In Slovenia, there have been some barriers preventing a patient organization specifically for HAE being registered. As a result, the patient representative Teja Iskra is in contact with rare diseases societies and is hoping to have HAE officially supported by one of these organizations. Teja Iskra was also invited [...]