Sweden

News from Denmark, Norway and Sweden

2024-01-29T12:07:22+01:00January 29, 2024|Denmark, Europe, Norway, Sweden|

From Jørn Schultz-Boysen, Vice President, HAE Scandinavia “Stronger Together”: Highlights from the 2023 Scandinavian Conference by HAE Scandinavia in Malmö: The welcoming city of Malmö, Sweden, played host to a memorable gathering from 10-12 November 2023, as HAE Scandinavia proudly presented the 5th Scandinavian Conference. Embracing the theme “Stronger Together,” more than 100 participants [...]

News from Nordics, Germany, Austria, Switzerland, and Israel

2023-11-10T12:30:11+01:00November 10, 2023|Austria, Denmark, Europe, Finland, Germany, HAEi News, Iceland, Israel, Norway, Sweden, Switzerland, The Faroe Islands|

From Regional Patient Advocate Jørn Schultz-Boysen Over the past months, the main focus has been the 2023 HAEi Regional Conference EMEA in Munich, Germany, 1-3 September 2023. You can read a lot more about the conference and the impact it has made amongst patients, caregivers, healthcare professionals, and representatives from the pharmaceutical companies in [...]

News from Denmark, Norway and Sweden

2023-07-12T14:45:06+02:00July 12, 2023|Denmark, Europe, Norway, Sweden|

From Jørn Schultz-Boysen, Vice President, HAE Scandinavia On 10 December 2022, HAE Scandinavia gathered 34 HAE patients and their family members in Norway to offer knowledge and information on various topics. In the city of Bergen, we had a very good Saturday with mostly people from the western region of Norway. The meeting was [...]

News from Nordics, Germany, Austria, Switzerland, and Israel

2023-06-16T09:59:44+02:00June 19, 2023|Denmark, Europe, Germany, HAEi News, Norway, Sweden, Switzerland|

From Regional Patient Advocate Jørn Schultz-Boysen Following the 2022 HAEi Global Leadership Workshop, there has been a lot of dialogue around many of the items and offerings that were presented in Frankfurt, Germany. Not least around HAE TrackR, the app that enables patients to take control of their HAE by registering acute and prophylactic [...]

News from Nordics & DACH

2022-12-27T13:08:19+01:00December 27, 2022|Denmark, Europe, Germany, HAEi News, Norway, Sweden, Switzerland|

From Regional Patient Advocate Jørn Schultz-Boysen The primary objective for the last three months was the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany. September with the preparations, October with the actual workshop, and then the follow-up. The workshop itself was a very successful event – not only for HAEi but certainly also for [...]

News from Denmark, Norway and Sweden

2022-11-25T11:24:57+01:00November 25, 2022|Denmark, Europe, Norway, Sweden|

From HAE Scandinavia Nanna Maria Boysen and Victoria Schultz-Boysen from HAE Scandinavia are working on a podcast series for young Scandinavian people with HAE and their relatives. The intention is to open a dialogue about topics large and small: living a young life with HAE and various issues that may be associated with it, [...]

News from Nordics & DACH

2022-10-31T13:12:52+01:00October 31, 2022|Denmark, Europe, HAEi News, Norway, Sweden|

From Regional Patient Advocate Jørn Schultz-Boysen In Denmark, three patient meetings were held in June. It was great to meet with patients and caregivers again, and good information about HAE was shared. Norway and Sweden are planning three patient meetings – two in Sweden and one in Norway – to be held before the [...]

News from Nordics & DACH

2022-07-06T15:36:55+02:00July 6, 2022|Austria, Denmark, Europe, Finland, Germany, HAEi News, Iceland, Norway, Sweden, Switzerland|

From Regional Patient Advocate Jørn Schultz-Boysen The Regional Medical Advisory Panel (RMAP) for my region is still being put together. Yet another country has found its RMAP, which is great – for other countries, we are waiting for a confirmation on who should join. The first round of dialogue has already been going on. [...]

News from Denmark, Norway and Sweden

2022-05-03T16:03:52+02:00May 3, 2022|Denmark, Europe, Norway, Sweden|

From HAE Scandinavia We are pleased to inform you about new treatment options in Scandinavia. In Norway, ORLADEYO™ (capsule) was approved on 1 December 2021 for the preventive treatment of HAE in adults and adolescents/children from 12 years of age. In Sweden, both ORLADEYO™ (capsule) and TAKHZYRO™ (injection under the skin) were approved on [...]

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