From Helene Saam, President, HAE Switzerland The highlights in 2023 for the Swiss HAE Association were as follows: Production of the film ‘HAE - Simply Explained’ >> Watch the film with German, English, French, and Italian subtitles Swiss HAE Association goes Social Media HAE patient meeting with 55 participants and 5 HAE experts. [...]
From Ernst Greber, HAE Switzerland HAE Film: ‘HAE - Simply Explained’ with added French and Italian subtitles: The Swiss HAE Association has had a film produced in which the rare disease Hereditary Angioedema (HAE) is explained in a simple manner for individuals affected by HAE and those interested in HAE. It is explained in [...]
From Regional Patient Advocate Jørn Schultz-Boysen Over the past months, the main focus has been the 2023 HAEi Regional Conference EMEA in Munich, Germany, 1-3 September 2023. You can read a lot more about the conference and the impact it has made amongst patients, caregivers, healthcare professionals, and representatives from the pharmaceutical companies in [...]
From President Helene Saam, HAE Switzerland We would like to thank Mediaplanet and BioCryst for the production of a short video for Rare Disease Day 2023. You can watch the video here. Also, we have produced a film explaining HAE to patients as well as anyone else interested. The film explains in non-medical language [...]
From Regional Patient Advocate Jørn Schultz-Boysen Following the 2022 HAEi Global Leadership Workshop, there has been a lot of dialogue around many of the items and offerings that were presented in Frankfurt, Germany. Not least around HAE TrackR, the app that enables patients to take control of their HAE by registering acute and prophylactic [...]
From Vice President Ernst Greber, HAE Switzerland Impressions from the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany: We were represented by three board members The event was excellently organized The lectures were very interesting and gave us new insights The exchange with other organizations was also very interesting 11 November 2022 we held [...]
From Regional Patient Advocate Jørn Schultz-Boysen The primary objective for the last three months was the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany. September with the preparations, October with the actual workshop, and then the follow-up. The workshop itself was a very successful event – not only for HAEi but certainly also for [...]
From HAE Switzerland Our patient meeting on 30 April 2022 was a complete success. We were able to welcome 28 members and 16 guests representing patients and caregivers, HAE doctors, and representatives of pharmaceutical and health care companies. The program included very interesting presentations on the medicines available in Switzerland. In celebration of hae [...]
From Regional Patient Advocate Jørn Schultz-Boysen The Regional Medical Advisory Panel (RMAP) for my region is still being put together. Yet another country has found its RMAP, which is great – for other countries, we are waiting for a confirmation on who should join. The first round of dialogue has already been going on. [...]
From HAE Switzerland Unfortunately, due to the corona virus, the last two patient meetings could not take place. The Federal Council has now given the go-ahead for such events, and we are again planning with full vigor. On 30th April 2022 we will meet at Hotel Arte in Olten. The following topics are planned: [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
