This year, we once again held an HAE patient meeting On Saturday, 20 April 2024, from 8:45 AM to 5:00 PM at Zurich Airport, these HAE experts were available for a panel discussion to answer the questions of the participants: Prof. Dr. Med. Dr. Phil. Walter A. Wuillemin, HAE expert, Lucerne Cantonal Hospital PD [...]
From Regional Patient Advocate Jørn Schultz-Boysen hae day :-) and activities for 16 May have been the big focus in the last few months. It’s great to see that so many of my region’s countries participated in the hae day :-) activity challenge and did even more around 16 May itself. To highlight a [...]
On Saturday, 20 April 2024, we will hold our annual patient meeting. After the welcome coffee, we will have: 5 HAE experts ready to answer questions and participate in a brief panel discussion HAE patients sharing experiences and offering valuable tips on medication use The board will also share many insights After a joint [...]
From Regional Patient Advocate Jørn Schultz-Boysen I am happy to share the great progress and big steps we have been making in the Nordics, DACH (Germany, Austria, Switzerland), and Israel. It is really rewarding to see how our combined efforts are paying off, raising awareness, and offering support to everyone with HAE and their [...]
From Helene Saam, President, HAE Switzerland The highlights in 2023 for the Swiss HAE Association were as follows: Production of the film ‘HAE - Simply Explained’ >> Watch the film with German, English, French, and Italian subtitles Swiss HAE Association goes Social Media HAE patient meeting with 55 participants and 5 HAE experts. [...]
From Ernst Greber, HAE Switzerland HAE Film: ‘HAE - Simply Explained’ with added French and Italian subtitles: The Swiss HAE Association has had a film produced in which the rare disease Hereditary Angioedema (HAE) is explained in a simple manner for individuals affected by HAE and those interested in HAE. It is explained in [...]
From Regional Patient Advocate Jørn Schultz-Boysen Over the past months, the main focus has been the 2023 HAEi Regional Conference EMEA in Munich, Germany, 1-3 September 2023. You can read a lot more about the conference and the impact it has made amongst patients, caregivers, healthcare professionals, and representatives from the pharmaceutical companies in [...]
From President Helene Saam, HAE Switzerland We would like to thank Mediaplanet and BioCryst for the production of a short video for Rare Disease Day 2023. You can watch the video here. Also, we have produced a film explaining HAE to patients as well as anyone else interested. The film explains in non-medical language [...]
From Regional Patient Advocate Jørn Schultz-Boysen Following the 2022 HAEi Global Leadership Workshop, there has been a lot of dialogue around many of the items and offerings that were presented in Frankfurt, Germany. Not least around HAE TrackR, the app that enables patients to take control of their HAE by registering acute and prophylactic [...]
From Vice President Ernst Greber, HAE Switzerland Impressions from the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany: We were represented by three board members The event was excellently organized The lectures were very interesting and gave us new insights The exchange with other organizations was also very interesting 11 November 2022 we held [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
