From HAE Georgia Website Launch: We are thrilled to announce the launch of the HAE Georgia website. Leveraging the free templates and web hosting provided by HAEi, our community now has a dedicated online platform to connect, share information, and foster a sense of unity among individuals dealing with HAE in Georgia. Diagnostic Advancements: [...]
From Parichehr Bahrain, HAE Iran HAE International Day (16 May 2023) in Immunology, Asthma and Allergy Research Institute, (IAARI) Tehran University of Medical Sciences, Iran On the Hereditary Angioedema (HAE) International Day, IAARI organized a webinar about the diagnosis and management of HAE, in which allergists, clinical immunologists, emergency medicine specialists, and biomedicine experts had [...]
From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From RPA Michal Rutkowski There is also great news from the United Arab Emirates regarding access to modern HAE therapies: Takeda has reached an agreement, and as a result, lanadelumab can be available to all patients with a copayment liability on insurance. The local HAE expert physician must initiate this support patient program.
From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]
From President Gökben Yurdakul, HAE Turkey In response to the challenges posed by the COVID-19 pandemic, HAE Turkey took action to provide support for patients and their families. We held information meetings with doctors in a region where adult and pediatric patients were the focus, sharing their struggles and working together to develop solutions. They [...]
From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value. Much [...]
From Regional Patient Advocate Michal Rutkowski I am excited to share with you that after a long pandemic period, I had the pleasure of attending a patient meeting in person organized in Yerevan in June by HAE Armenia. It was so amazing to meet local patients, caregivers, and HAE expert physicians and to focus [...]
A warm word of welcome to Oman, the 95th member of the global HAEi family. National Contact is Maryam Al Balushi. At this point, we have registered an ACARE center, an HAE knowledgeable hospital, and an HAE knowledgeable physician in Oman. >> Contact information can be found on Oman's country page [...]
From Regional Patient Advocate Michal Rutkowski I am excited to announce that the HAEi global family now comprises 95 Member Organizations. One of the most recent additions is HAE Oman, represented by Maryam Al Balushi. So, HAE Oman, welcome on board! March, April, and May 2022 have been very busy with different advocacy activities. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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