From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]
From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value. Much [...]
A warm word of welcome to Oman, the 95th member of the global HAEi family. National Contact is Maryam Al Balushi. At this point, we have registered an ACARE center, an HAE knowledgeable hospital, and an HAE knowledgeable physician in Oman. >> Contact information can be found on Oman's country page [...]
From Regional Patient Advocate Michal Rutkowski I am excited to announce that the HAEi global family now comprises 95 Member Organizations. One of the most recent additions is HAE Oman, represented by Maryam Al Balushi. So, HAE Oman, welcome on board! March, April, and May 2022 have been very busy with different advocacy activities. [...]
From Regional Patient Advocate Michal Rutkowski I hope you have had an enjoyable holiday season and went energized into the new year with advocacy motivation. So many things have happened since the last edition of Global Perspectives magazine, and I am happy to share it all with you. I was privileged to attend numerous [...]
From Regional Patient Advocate Michal Rutkowski I am delighted to report that thanks to the HAE International hosted website tool HAE Poland (the Swelling Beautifully Association) has launched a completely new web, containing a number of user-friendly features both for patients and health care professionals. Above all, the site has become a fully digital [...]
By Michal Rutkowski, HAEi Regional Patient Advocate Middle East & Gulf Region, and Rashad Matraji, HAEi Contractor Patient Advocacy The intro into the new year was fascinating for the Middle East and Gulf Region HAE Community as the 2020 HAEi Middle East and Gulf Region Workshop took place 9-10 January at Crowne Plaza Muscat OCEC [...]
From Regional Patient Advocate Michal Rutkowski I organized and held Regional Workshops in Wroclaw and Lodz, Poland, during February. Together with HAE Ukraine, I have been working on preparations for the national summit to be held in Ukraine – and along with HAE Belarus, I have worked on the concept and schedule for the immunology [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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