From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
This input is dated May 2021 >> View content in العربية In brief Name for organization: HAE in Syria 16 members at 1 Jan 2021 Name of approved HAE treatments: Antihistamine Corticosteroids Adrenaline Fun/interesting facts Syria’s capital is Damascus, and has claim to be the oldest continuously lived-in [...]
From Regional Patient Advocate Michal Rutkowski I am delighted to report that thanks to the HAE International hosted website tool HAE Poland (the Swelling Beautifully Association) has launched a completely new web, containing a number of user-friendly features both for patients and health care professionals. Above all, the site has become a fully digital [...]
From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]
A Syrian patient with HAE in his family has been identified via Facebook – HAEi is working on developing more contacts. Due to the war, there is no access to medication but together with a local doctor, we are trying to assist with information.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
