What I learned in 10 years of HAE Advocacy I had the incredible opportunity to represent HAE Turkey at the 2024 HAEi Global Leadership Workshop (GLW), held from October 3-6, 2024, in Copenhagen, Denmark. The GLW brought together more than 750 participants from almost 100 countries. It was truly heartwarming to reconnect with friends [...]
Collaborative Efforts and Advocacy At the start of this year, HAE Türkiye established a significant collaboration with another NGO focused on health policies. This partnership resulted in the publication of two position letters aimed at addressing the most pressing issues faced by HAE patients in Türkiye and providing concrete solutions. These letters, rooted in [...]
From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From President Gökben Yurdakul, HAE Turkey In response to the challenges posed by the COVID-19 pandemic, HAE Turkey took action to provide support for patients and their families. We held information meetings with doctors in a region where adult and pediatric patients were the focus, sharing their struggles and working together to develop solutions. They [...]
From President Gökben Yurdakul, HAE Turkey We are so happy to be here and share our accomplishments with you. During the COVID-19 pandemic, we have held a number of online meetings with our patients and their relatives. This has been done in order to gather information about COVID-19 infected people’s troubles and concerns. Also, we [...]
By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]
By Natasa Angjeleska, HAEi Regional Patient Advocate South Eastern Europe Before being nominated as HAEi Regional Patient Advocate for the South Eastern Europe countries (SEE), I established communications through my colleagues from HAE Macedonia with some of the HAE patients in this region. We were motivated by the will to meet with patients from neighboring [...]
From Ersan Sevinc, International Communications Manager, HAE Turkey (HAÖDER): It has been hectic days since the beginning of September. After a long and a beautiful summer, HAE Turkey took off to attend the HAEi SEE Workshop annually held in Skopje, Macedonia. We presented the improvements and our goals for the next year. We are now [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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HAE International (HAEi)
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