From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From RPA Michal Rutkowski There is also great news from the United Arab Emirates regarding access to modern HAE therapies: Takeda has reached an agreement, and as a result, lanadelumab can be available to all patients with a copayment liability on insurance. The local HAE expert physician must initiate this support patient program.
From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]
From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value. Much [...]
From Regional Patient Advocate Michal Rutkowski I am excited to announce that the HAEi global family now comprises 95 Member Organizations. One of the most recent additions is HAE Oman, represented by Maryam Al Balushi. So, HAE Oman, welcome on board! March, April, and May 2022 have been very busy with different advocacy activities. [...]
From Regional Patient Advocate Michal Rutkowski Despite the difficult global pandemic situation, I hope you are keeping safe, healthy and have been already vaccinated. Firstly, happy birthday to HAE Belarus and HAE Kazakhstan, who recently celebrated the 4th and 3rd anniversaries. The organizations and patients strive to have the first modern HAE treatment reimbursed, [...]
Hello everyone! I hope you had a fabulous hae day :-) and you did enjoy what HAEi had prepared to celebrate the 10th anniversary of the awareness day. The past few months have been incredibly busy and full of different activities in the regions I am responsible for. Together with Maria Ferron, the Regional [...]
The recent months have been busy with plenty of advocacy activities for patients in Central Eastern Europe, Benelux and the Middle East. This period was full of virtual meetings with member organizations, both individual and group, during which we discussed important projects delivered and implemented by HAEi. It is truly amazing to be part [...]
From Regional Patient Advocate Michal Rutkowski The September-October period was intense in terms of my involvement in various activities in the regions. First of all, the main activity was the preparation of the 2020 HAEi Virtual Regional Workshop Central Eastern Europe & Benelux, which is extremely time-consuming. With the global pandemic limitations, the HAEi [...]
By Michal Rutkowski, HAEi Regional Patient Advocate Middle East & Gulf Region, and Rashad Matraji, HAEi Contractor Patient Advocacy The intro into the new year was fascinating for the Middle East and Gulf Region HAE Community as the 2020 HAEi Middle East and Gulf Region Workshop took place 9-10 January at Crowne Plaza Muscat OCEC [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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