North America

News from Canada

2019-07-16T16:00:52+02:00July 16, 2019|Canada|

From Daphne Dumbrille, HAE Canada Volunteer Coordinator: HAE Canada has had a busy spring. Things kicked off with the HAE Canada Director at Large, Anne Rowe and Ontario Regional Director, Tina McGrath, attending the Network of Rare Blood Disorder  Organizations (NRBDO) Spring Forum in Toronto in April. It was an informative and busy weekend discussing many issues, particularly around the importance of [...]

News from the United States of America

2019-07-16T15:41:20+02:00July 16, 2019|United States of America|

From Managing Director Michelle Cuevas, US HAEA: Multiple events: This year’s hae day :-) generated a lot of excitement in the United States with a large number of HAEA members participating in and/or hosting events, educating others, and raising HAE awareness in their communities! We are very excited that hundreds of the new HAE E.R. Tool Kits have already been ordered, [...]

News from Mexico and South America

2019-07-16T16:52:53+02:00July 9, 2019|Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Peru, South America, Uruguay, Venezuela|

From Fernanda de Oliveira Martins, Regional Patient Advocate for Mexico and South America 27-28 April 2019, I organized a meeting for the leaders of the national HAE patients’ associations in South America and Mexico. The gathering took place in Bogota, Colombia and the represented countries were Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, [...]

The Value of Prophylactic Therapy

2019-07-17T17:32:58+02:00April 7, 2019|HAEi News, North America|

A study sponsored by the US HAEA and HAEi assess the value of the new subcutaneous prophylaxis therapies to on-demand only treatment. The results of the study were presented as a poster at the annual meeting of the American Academy of Allergy, Asthma & Immunology (AAAAI) in San Francisco, USA 22-25 February 2019. The presenters [...]

United States of America

2019-03-13T09:37:54+02:00February 14, 2019|

HAE UNITED STATES OF AMERICA The US Hereditary Angioedema Association United States of America  ·  North America On this page we have pulled together presently available information relevant for HAE patients and caregivers in United  States of America. HAE online in [...]

Mexico

2019-05-12T08:34:22+02:00February 13, 2019|

HAE MEXICO Asociación Mexicana de Angioedema Hereditario A.C. Mexico Mexico  ·  North America On this page we have pulled together presently available information relevant for HAE patients and caregivers in Mexico. HAE online in Mexico Visit [...]

Canada

2019-05-10T23:22:45+02:00February 11, 2019|

HAE CANADA Hereditary Angioedema (HAE) Canada / Angioédème Héréditaire (AEH) Canada Canada ·  North America On this page we have pulled together presently available information relevant for HAE patients and caregivers in Canada. HAE online in Canada [...]

News from Mexico

2019-07-16T22:15:19+02:00July 1, 2017|Mexico|

From Sandra Agustina Nieto-Martínez, President of HAE Mexico: Veracruz is the first state of the Mexican Republic to implement a registry of patients with rare diseases as well as the policies necessary to provide patients with comprehensive diagnoses, medical care, and orphan drugs. The initiative of Deputy Yazmin Copete Zapot was unanimously approved by the [...]