The US HAEA is committed to delivering engaging and informative programs, services, and activities to our expansive membership of over 8,000 individuals. These initiatives aim to unite the HAE community in pursuit of our collective and shared objective: enhancing the quality of life for those with HAE. 2023 US HAEA National Summit – Living [...]
From Michelle Cooper, President, Jacquie Badiou, Past President, and Daphne Dumbrille, COO, HAE Canada A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit from gaining accreditation from Imagine Canada, a national organization that helps not-for-profits become and remain effective, accountable, and productive. Since then, she, along with past [...]
We are all familiar with the enriching conversations, valuable educational content, and unforgettable memories that unfold when a significant gathering of HAE community members takes place, and the 2023 US HAEA National Summit was no exception. For the first time in four years, the US HAEA was honored to host our HAE community in [...]
From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]
From HAE Canada The first event of the year was the 2023 American Academy of Allergy, Asthma & Immunology (AAAAI) Annual Meeting in San Antonio, Texas, United States. Thank you to Suzanne Kelly of Red Maple Trials, who presented the HAE Canada poster on our behalf, titled “Emergency room visits by patients with HAE [...]
From Director of Engagement & Communications Ianice Viel, US HAEA We are dedicated to providing our 8,000 members with programs, services, and activities that engage and unite the community in a common goal focused on improving quality of life for people with HAE. HAEA Round Tables: Because HAE is so rare, people can feel [...]
From Regional Patient Advocate Fernanda De Oliveira Martins First of all, I would like to welcome José Ignacio Contreras Silva as the leader of the new Member Organization in Chile. In Spanish, the name is Corporación Angioedema Hereditario Chile – globally known as HAE Chile. The new group is getting to know the HAEi [...]
From HAE Canada As the season ends, we must start with the most impactful event from fall 2022: the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany. We’d like to deeply thank the HAEi team for giving HAE Canada’s leadership the opportunity to participate in such a worthwhile experience. HAEi did a phenomenal job [...]
From US HAEA 2022 HAEA Year in Review: Throughout 2022, the HAEA has continued to provide our 8,000 members with programs, services, and activities that engage and unite our community, and help people maintain the hard-fought access to and reimbursement for modern HAE medicines. During the year, we developed and implemented a wide variety [...]
From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
