North America

News from USA

2020-07-08T17:33:48+02:00July 8, 2020|North America, United States of America|

From Ianice Viel, Patient Advocate/Social Media Manager, US HAEA COVID-19 webinars and Webinar Briefs: In light of the COVID-19 pandemic, the US HAEA has been offering a series of webinars presenting information on the latest developments on COVID-19. The webinars focus on potential health risks presented by the coronavirus to HAE patients, regulatory and [...]

News from South America & Mexico

2020-07-01T13:59:10+02:00June 29, 2020|HAEi News, North America, South America, Venezuela|

  From Regional Patient Advocate Fernanda de Oliveira Martins I have had an online meeting with the President of Society of Allergies, Asthma and Immunology Dr. Joselit Torres and the President of HAE Venezuela Wilfredo Bocaranda. Topics discussed included identifying HAE and its treatments in crisis. Questions and concerns from patients registered with the foundation [...]

News from Canada

2020-04-12T12:19:16+02:00April 11, 2020|Canada|

From President Jacquie Badiou and Volunteer Coordinator Daphne Dumbrille, HAE Canada It has been a few months since our last article in Global Perspectives, but not due to a lack of exciting news to report – it’s hard to know where to begin. We would like to start with an important announcement: We are pleased [...]

News from the United States of America

2020-04-12T12:06:33+02:00April 11, 2020|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager US HAEA Hosts Meet & Greet Events: The US HEAE kicked-off 2020 with an expanded focus on the Meet & Greet program. This outreach initiative offers patients and caregivers the opportunity to interact directly with each other and the HAEA staff. The events are designed so [...]

News from Mexico

2020-04-11T15:29:22+02:00April 11, 2020|Mexico|

From Regional Patient Advocate Fernanda de Oliveira Martins I have held calls with member organization leaders in my region, which have been very successful. So far, the participants have included leaders from Brazil, Colombia, Mexico, Ecuador, Venezuela, Chile, and Paraguay. During the calls, we initiated the regional advisory group discussions and went through the Code of [...]

News from South America & Mexico

2020-04-07T15:51:36+02:00April 7, 2020|Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I have held calls with member organization leaders in my region, which have been very successful. So far, the participants have included leaders from Brazil, Colombia, Mexico, Ecuador, Venezuela, Chile, and Paraguay. During the calls, we initiated the Regional Advisory Group discussions and went through the Code [...]

HAEGARDA now available in the province of Québec

2020-02-07T10:35:49+02:00February 7, 2020|Canada, HAEi News|

HAEGARDA (C1 Esterase Inhibitor Subcutaneous [Human]) is now available in the province of Québec, Canada. “The availability of a new treatment option to help health care professionals and patients prevent HAE attacks is an important milestone and great news for the HAE patient community,” said Charles St-Pierre, President of the AOHQ patient group. CSL Behring [...]

News from Canada

2020-01-03T13:09:33+02:00December 30, 2019|Canada|

From Executive Director Peter Waite, Canadian Hereditary Angioedema Network: The Canadian Hereditary Angioedema Network has updated its 2014 Canadian Hereditary Angioedema Guideline with an expanded scope to include the management of HAE patients worldwide. It is a collaboration of Canadian and international HAE experts and patient groups led by the Canadian Hereditary Angioedema Network. The objective of this guideline is to provide evidence-based recommendations, [...]

News from the United States of America

2020-01-03T13:17:25+02:00December 30, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager It’s with tremendous gratitude that we wrap up an exciting year at the US HAEA filled with activities that brought us closer as a HAE family while continuing to push the boundaries on HAE discoveries, treatment, and care. We are now more committed than ever to help every HAE patient lead [...]