North America

News from Canada

2020-01-03T13:09:33+01:00December 30, 2019|Canada|

From Executive Director Peter Waite, Canadian Hereditary Angioedema Network: The Canadian Hereditary Angioedema Network has updated its 2014 Canadian Hereditary Angioedema Guideline with an expanded scope to include the management of HAE patients worldwide. It is a collaboration of Canadian and international HAE experts and patient groups led by the Canadian Hereditary Angioedema Network. The objective of this guideline is to provide evidence-based recommendations, [...]

News from the United States of America

2020-01-03T13:17:25+01:00December 30, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager It’s with tremendous gratitude that we wrap up an exciting year at the US HAEA filled with activities that brought us closer as a HAE family while continuing to push the boundaries on HAE discoveries, treatment, and care. We are now more committed than ever to help every HAE patient lead [...]

News from the United States of America

2019-10-11T23:07:38+01:00October 11, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager Nico’s Lunchbox Book: The US HAEA Engagement team continues to work hard to make sure our youngest patients receive support in a way that keeps them engaged and entertained. This year, the US HAEA chapter teamed up with children’s author Caryn Sonberg Seiler to develop a three-book series to help kids learn about HAE in a relatable way. The [...]

News from Canada

2019-10-11T22:56:14+01:00October 11, 2019|Canada|

From President Jacquie Badiou and Daphne Dumbrille from the HAE Canada office Summers are always too short and 2019 was no exception. July was particularly eventful for two HAE Canada Youth members, Paige and Makayla, who were fortunate to attend HAEi’s Youngsters Summer Camp in Atlanta. Their experience is best heard from their perspectives: Paige: This July I attended a Youth [...]

News from Canada

2019-07-16T16:00:52+01:00July 16, 2019|Canada|

From Daphne Dumbrille, HAE Canada Volunteer Coordinator: HAE Canada has had a busy spring. Things kicked off with the HAE Canada Director at Large, Anne Rowe and Ontario Regional Director, Tina McGrath, attending the Network of Rare Blood Disorder  Organizations (NRBDO) Spring Forum in Toronto in April. It was an informative and busy weekend discussing many issues, particularly around the importance of [...]

News from the United States of America

2019-07-16T15:41:20+01:00July 16, 2019|United States of America|

From Managing Director Michelle Cuevas, US HAEA: Multiple events: This year’s hae day :-) generated a lot of excitement in the United States with a large number of HAEA members participating in and/or hosting events, educating others, and raising HAE awareness in their communities! We are very excited that hundreds of the new HAE E.R. Tool Kits have already been ordered, [...]

The Value of Prophylactic Therapy

2019-07-17T17:32:58+01:00April 7, 2019|HAEi News, North America|

A study sponsored by the US HAEA and HAEi assess the value of the new subcutaneous prophylaxis therapies to on-demand only treatment. The results of the study were presented as a poster at the annual meeting of the American Academy of Allergy, Asthma & Immunology (AAAAI) in San Francisco, USA 22-25 February 2019. The presenters [...]

Mexico

2019-10-28T10:06:51+01:00February 13, 2019|

HAE MEXICO Asociación Mexicana de Angioedema Hereditario A.C. Mexico Mexico  ·  North America On this page we have pulled together presently available information relevant for HAE patients and caregivers in Mexico. HAE online in Mexico Visit [...]

Canada

2019-10-21T08:11:24+01:00February 11, 2019|

HAE CANADA Hereditary Angioedema (HAE) Canada / Angioédème Héréditaire (AOH) Canada Canada ·  North America On this page we have pulled together presently available information relevant for HAE patients and caregivers in Canada. HAE online in Canada [...]