North America

News from North America

2024-05-03T09:33:09+02:00May 3, 2024|Canada, HAEi News, North America, United States of America|

From Regional Patient Advocate Anthony J. Castaldo HAEi has frequent and productive contact with the HAE Canada (HAEC) Team, including President Michelle Cooper, Past President Jacquie Badiou, and Chief Operating Officer Daphne Dumbrille. HAEC is working to promote HAEi Advocacy Academy to their 500 members and make the HAEi Emergency Department poster available in [...]

News from South America and Mexico

2024-05-03T09:10:41+02:00May 3, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]

News from USA

2024-01-29T12:55:30+01:00January 29, 2024|North America, United States of America|

From Jess Myers, Communication and Advocacy Specialist, US HAEA US HAEA Advocacy Update: The US HAEA advocacy team has been hard at work this year to fight against harmful policies that prevent Americans with HAE from accessing their lifesaving medications. Recently, there have been some exciting steps forward for HAE advocacy including: On October [...]

News from Canada

2024-01-17T10:28:23+01:00January 17, 2024|Canada, North America|

From Michelle Cooper (HAEC President and Ontario Regional Director), Jacquie Badiou, (Past President), and Daphne Dumbrille (COO), HAE Canada In October, HAE Canada President, Michelle Cooper, along with COO, Daphne Dumbrille, were given the opportunity to attend BioCryst’s first annual Patient Community Open House at their Discovery Center of Excellence Labs in Birmingham, Alabama. [...]

News from USA

2023-11-11T11:32:02+01:00November 11, 2023|North America, United States of America|

The US HAEA is committed to delivering engaging and informative programs, services, and activities to our expansive membership of over 8,000 individuals. These initiatives aim to unite the HAE community in pursuit of our collective and shared objective: enhancing the quality of life for those with HAE. 2023 US HAEA National Summit – Living [...]

News from Canada

2023-11-11T11:15:04+01:00November 11, 2023|Canada, North America|

From Michelle Cooper, President, Jacquie Badiou, Past President, and Daphne Dumbrille, COO, HAE Canada A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit from gaining accreditation from Imagine Canada, a national organization that helps not-for-profits become and remain effective, accountable, and productive. Since then, she, along with past [...]

2023 US HAEA National Summit – Living Beyond Boundaries

2023-11-11T10:46:32+01:00November 11, 2023|Canada, HAEi News, North America, United States of America|

We are all familiar with the enriching conversations, valuable educational content, and unforgettable memories that unfold when a significant gathering of HAE community members takes place, and the 2023 US HAEA National Summit was no exception. For the first time in four years, the US HAEA was honored to host our HAE community in [...]

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

News from Canada

2023-07-12T16:19:34+02:00July 12, 2023|Canada, North America|

From HAE Canada The first event of the year was the 2023 American Academy of Allergy, Asthma & Immunology (AAAAI) Annual Meeting in San Antonio, Texas, United States. Thank you to Suzanne Kelly of Red Maple Trials, who presented the HAE Canada poster on our behalf, titled “Emergency room visits by patients with HAE [...]

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