News from North America

2024-05-03T09:33:09+02:00May 3, 2024|Canada, HAEi News, North America, United States of America|

From Regional Patient Advocate Anthony J. Castaldo HAEi has frequent and productive contact with the HAE Canada (HAEC) Team, including President Michelle Cooper, Past President Jacquie Badiou, and Chief Operating Officer Daphne Dumbrille. HAEC is working to promote HAEi Advocacy Academy to their 500 members and make the HAEi Emergency Department poster available in [...]

News from Canada

2024-01-17T10:28:23+01:00January 17, 2024|Canada, North America|

From Michelle Cooper (HAEC President and Ontario Regional Director), Jacquie Badiou, (Past President), and Daphne Dumbrille (COO), HAE Canada In October, HAE Canada President, Michelle Cooper, along with COO, Daphne Dumbrille, were given the opportunity to attend BioCryst’s first annual Patient Community Open House at their Discovery Center of Excellence Labs in Birmingham, Alabama. [...]

News from Canada

2023-11-11T11:15:04+01:00November 11, 2023|Canada, North America|

From Michelle Cooper, President, Jacquie Badiou, Past President, and Daphne Dumbrille, COO, HAE Canada A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit from gaining accreditation from Imagine Canada, a national organization that helps not-for-profits become and remain effective, accountable, and productive. Since then, she, along with past [...]

2023 US HAEA National Summit – Living Beyond Boundaries

2023-11-11T10:46:32+01:00November 11, 2023|Canada, HAEi News, North America, United States of America|

We are all familiar with the enriching conversations, valuable educational content, and unforgettable memories that unfold when a significant gathering of HAE community members takes place, and the 2023 US HAEA National Summit was no exception. For the first time in four years, the US HAEA was honored to host our HAE community in [...]

News from Canada

2023-07-12T16:19:34+02:00July 12, 2023|Canada, North America|

From HAE Canada The first event of the year was the 2023 American Academy of Allergy, Asthma & Immunology (AAAAI) Annual Meeting in San Antonio, Texas, United States. Thank you to Suzanne Kelly of Red Maple Trials, who presented the HAE Canada poster on our behalf, titled “Emergency room visits by patients with HAE [...]

News from Canada

2023-01-20T14:12:19+01:00January 20, 2023|Canada, North America|

From HAE Canada As the season ends, we must start with the most impactful event from fall 2022: the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany. We’d like to deeply thank the HAEi team for giving HAE Canada’s leadership the opportunity to participate in such a worthwhile experience. HAEi did a phenomenal job [...]

News from Canada

2022-11-25T11:35:28+01:00November 25, 2022|Canada, North America|

From Daphne Dumbrille (COO) and Jacquie Badiou (President), HAE Canada: At the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, HAE Canada proudly presented a poster titled “HAE with normal C1 esterase inhibitor (HAEnC1INH): Diagnosis, treatment and attack frequency from the 2020 Canadian patient survey”. We are grateful to have been invited and appreciate [...]

News from Canada

2022-08-09T11:31:46+02:00August 9, 2022|Canada, North America|

From COO Daphne Dumbrille and President Jacquie Badiou, HAE Canada: Exciting news: Canadian HAE patients are one step closer to gaining access to the first oral HAE treatment. Health Canada has recently approved BioCryst’s treatment, ORLADEYO® (berotralstat), for the routine prevention of HAE attacks in patients 12 years and older. HAE Canada will continue [...]

News from Canada

2022-01-13T09:28:59+01:00January 13, 2022|Canada, North America|

From President Jacquie Badiou and COO Daphne Dumbrille, HAE Canada This fall HAE Canada hit the ground running. Our first task of the season was to present our poster titled, “Hereditary angioedema in Canada: Changes in medication use and untreated attacks between the 2017 and 2020 surveys” at the Canadian Society of Allergy and [...]

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