From Michelle Cooper (HAEC President and Ontario Regional Director), Jacquie Badiou, (Past President), and Daphne Dumbrille (COO), HAE Canada In October, HAE Canada President, Michelle Cooper, along with COO, Daphne Dumbrille, were given the opportunity to attend BioCryst’s first annual Patient Community Open House at their Discovery Center of Excellence Labs in Birmingham, Alabama. [...]
From Michelle Cooper, President, Jacquie Badiou, Past President, and Daphne Dumbrille, COO, HAE Canada A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit from gaining accreditation from Imagine Canada, a national organization that helps not-for-profits become and remain effective, accountable, and productive. Since then, she, along with past [...]
We are all familiar with the enriching conversations, valuable educational content, and unforgettable memories that unfold when a significant gathering of HAE community members takes place, and the 2023 US HAEA National Summit was no exception. For the first time in four years, the US HAEA was honored to host our HAE community in [...]
From HAE Canada The first event of the year was the 2023 American Academy of Allergy, Asthma & Immunology (AAAAI) Annual Meeting in San Antonio, Texas, United States. Thank you to Suzanne Kelly of Red Maple Trials, who presented the HAE Canada poster on our behalf, titled “Emergency room visits by patients with HAE [...]
From HAE Canada As the season ends, we must start with the most impactful event from fall 2022: the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany. We’d like to deeply thank the HAEi team for giving HAE Canada’s leadership the opportunity to participate in such a worthwhile experience. HAEi did a phenomenal job [...]
From Daphne Dumbrille (COO) and Jacquie Badiou (President), HAE Canada: At the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, HAE Canada proudly presented a poster titled “HAE with normal C1 esterase inhibitor (HAEnC1INH): Diagnosis, treatment and attack frequency from the 2020 Canadian patient survey”. We are grateful to have been invited and appreciate [...]
From COO Daphne Dumbrille and President Jacquie Badiou, HAE Canada: Exciting news: Canadian HAE patients are one step closer to gaining access to the first oral HAE treatment. Health Canada has recently approved BioCryst’s treatment, ORLADEYO® (berotralstat), for the routine prevention of HAE attacks in patients 12 years and older. HAE Canada will continue [...]
From HAE Canada Our first big piece of news to share is that the HAE Canada team has blossomed to eight Board of Director members. At the 2021 Annual General Meeting on 7 December, we thanked our outgoing Board members, and welcomed our new Board members who will bring their own expertise to the [...]
From President Jacquie Badiou and COO Daphne Dumbrille, HAE Canada This fall HAE Canada hit the ground running. Our first task of the season was to present our poster titled, “Hereditary angioedema in Canada: Changes in medication use and untreated attacks between the 2017 and 2020 surveys” at the Canadian Society of Allergy and [...]
From President Jacquie Badiou and COO Daphne Dumbrille, HAE Cananda: Over the summer, we received the news that our abstract titled “Hereditary angioedema in Canada: Changes in medication use and untreated attacks between the 2017 and 2020 surveys” was accepted to the Canadian Society of Allergy and Clinical Immunology (CSACI)’s Annual 2021 Scientific Virtual [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
