Mexico

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

News from South America and Mexico

2023-06-16T09:44:42+02:00June 19, 2023|Chile, HAEi News, Mexico, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins First of all, I would like to welcome José Ignacio Contreras Silva as the leader of the new Member Organization in Chile. In Spanish, the name is Corporación Angioedema Hereditario Chile – globally known as HAE Chile. The new group is getting to know the HAEi [...]

News from South America and Mexico

2022-12-27T13:46:39+01:00December 27, 2022|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]

News from South America and Mexico

2022-10-31T13:23:56+01:00October 31, 2022|HAEi News, Mexico, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins We have all been excited looking forward to the Global Leadership Workshop in Frankfurt, Germany. The idea of bringing the leaders/board members of the HAE community together in a face-to-face meeting after so much time apart has added extra energy to our region. During the months [...]

News from South America and Mexico

2022-07-06T15:42:17+02:00July 6, 2022|Bolivia, HAEi News, Mexico, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins Very recently, we welcomed Bolivia to our global HAE family as two Bolivian patients are working on establishing a patient group. A group has already been created on Facebook >> please make sure to visit and like the page. Furthermore, HAEi is in the process of [...]

News from South America and Mexico

2022-04-04T10:14:47+02:00April 4, 2022|HAEi News, Mexico, North America, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins We are planning to apply the Baseline Burden of Illness Study in Mexico to understand the patient situation in the country better and support them better. The translation and adaptation of the questionnaire is being made by the leader of HAE Mexico. The US HAEA has [...]

News from South America and Mexico

2021-12-30T11:02:03+01:00December 30, 2021|Brazil, Chile, HAEi News, Mexico, North America, Peru, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins I keep encouraging leaders from the member organizations in my region to follow the HAEi Advocacy Academy exclusive courses – lately, I have been sending them information on course updates. I have supported Carla María Goachet Boulanger, President of HAE Peru, with some points regarding the [...]

News from South America and Mexico

2021-10-06T09:43:37+02:00October 6, 2021|Argentina, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, North America, Paraguay, Peru, South America, Uruguay, Venezuela|

I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating [...]

10 year achievements – Mexico

2021-10-11T13:28:22+02:00July 15, 2021|10 year achievements, Mexico, North America, Regions|

This input is dated May 2021 >> View content in Español In brief Name for organization: HAE Mexico 300 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Firazyr Kalbitor Takhzyro Tranexamic acid Danazol Fun/interesting facts The celebration of the Day of the Dead is [...]

2021 HAEi virtual regional workshop South America & Mexico, Central America & Caribbean

2021-07-05T15:16:59+02:00July 5, 2021|Argentina, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Mexico, North America, Panama, Paraguay, Peru, Puerto Rico, South America, Uruguay, Venezuela|

The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years.  Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]

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