From Jess Myers, Communication and Advocacy Specialist, US HAEA US HAEA Advocacy Update: The US HAEA advocacy team has been hard at work this year to fight against harmful policies that prevent Americans with HAE from accessing their lifesaving medications. Recently, there have been some exciting steps forward for HAE advocacy including: On October [...]
The US HAEA is committed to delivering engaging and informative programs, services, and activities to our expansive membership of over 8,000 individuals. These initiatives aim to unite the HAE community in pursuit of our collective and shared objective: enhancing the quality of life for those with HAE. 2023 US HAEA National Summit – Living [...]
We are all familiar with the enriching conversations, valuable educational content, and unforgettable memories that unfold when a significant gathering of HAE community members takes place, and the 2023 US HAEA National Summit was no exception. For the first time in four years, the US HAEA was honored to host our HAE community in [...]
From Director of Engagement & Communications Ianice Viel, US HAEA We are dedicated to providing our 8,000 members with programs, services, and activities that engage and unite the community in a common goal focused on improving quality of life for people with HAE. HAEA Round Tables: Because HAE is so rare, people can feel [...]
From US HAEA 2022 HAEA Year in Review: Throughout 2022, the HAEA has continued to provide our 8,000 members with programs, services, and activities that engage and unite our community, and help people maintain the hard-fought access to and reimbursement for modern HAE medicines. During the year, we developed and implemented a wide variety [...]
From Ianice Viel, Communications & Digital Manager, US HAEA Youth Advocacy Month (US HAEA & HAEi Youngsters): October was HAE Youth Advocacy Month, and we invited all HAEA Youth members and HAEi Youngsters to help raise awareness by wearing blue for #BeyondHAE! This year, we made it easier than ever to participate. We invited [...]
From Ianice Viel, HAE Advocate & Digital & Social Media Manager, US HAEA Guide for Women with HAE: We have exciting news for women and young girls with HAE! Women and girls have extra concerns to acknowledge understanding their HAE diagnosis. While keeping this in mind, the US HAEA has developed a comprehensive guide [...]
From Ianice Viel, HAE Advocate & Digital & Social Media Manager: hae day :-) 2022 Awareness Campaign: The achievements of the HAE community in recent years are something to be celebrated on a national scale! Ten years ago, the HAEA recognized the need for legislative action to promote national awareness aimed at ultimately improving [...]
From Digital & Social Media Manager Ianice Viel, US HAEA 2021 has continued to be an incredibly productive year for the US HAEA despite the ongoing pandemic-related challenges. As shown in the examples that follow, our programs, services, and activities continued to generate great enthusiasm and participation. 2021 US HAEA Virtual Summit Series: The [...]
From Ianice Viel, Digital & Social Media Manager, US HAEA: 2021 US HAEA Virtual Summit Series: In light of the COVID-19 restrictions, the HAEA reimagined and designed an innovative alternative to the in-person Summits we had held every other year over the past two decades. The 2021 US HAEA Virtual Summit featured four live [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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Denmark
gro.ieah@ofni
