10 year achievements – United States of America

2021-07-15T14:43:39+02:00July 15, 2021|North America, Regions, United States of America|

This input is dated May 2021 In brief Name for organization: US Hereditary Angioedema Association 10,000 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Cinryze Firazyr Haegarda Kalbitor Orladeyo Ruconest Takhzyro Fun/interesting facts The United States has the fourth longest river system in the world. [...]

News from USA

2020-12-28T11:58:07+01:00December 28, 2020|North America, United States of America|

From Patient Advocate/Social Media Manager Ianice Viel, US HAEA HAE Research: The US HAEA continues to sponsor, produce, and disseminate scientific information that leads to better care for people with HAE. Some of our recently completed projects are highlighted below. Hereditary Angioedema Primer: The US HAEA joined forces with the prestigious medical journal Allergy [...]

News from USA

2020-10-05T11:39:53+02:00October 5, 2020|North America, United States of America|

From Patient Advocate/Social Media Manager Ianice Viel, US HAEA: US HAEA Programs Transition During COVID-19 Pandemic: The COVID-19 pandemic has dramatically altered the way we communicate and connect with one another. At the US HAEA, we understand how vital it is for our HAE community to feel connected despite COVID-19 restrictions. Our commitment to [...]

News from USA

2020-07-08T17:33:48+02:00July 8, 2020|North America, United States of America|

From Ianice Viel, Patient Advocate/Social Media Manager, US HAEA COVID-19 webinars and Webinar Briefs: In light of the COVID-19 pandemic, the US HAEA has been offering a series of webinars presenting information on the latest developments on COVID-19. The webinars focus on potential health risks presented by the coronavirus to HAE patients, regulatory and [...]

News from the United States of America

2020-04-12T12:06:33+02:00April 11, 2020|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager US HAEA Hosts Meet & Greet Events: The US HEAE kicked-off 2020 with an expanded focus on the Meet & Greet program. This outreach initiative offers patients and caregivers the opportunity to interact directly with each other and the HAEA staff. The events are designed so [...]

News from the United States of America

2020-01-03T13:17:25+01:00December 30, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager It’s with tremendous gratitude that we wrap up an exciting year at the US HAEA filled with activities that brought us closer as a HAE family while continuing to push the boundaries on HAE discoveries, treatment, and care. We are now more committed than ever to help every HAE patient lead [...]

News from the United States of America

2019-10-11T23:07:38+02:00October 11, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager Nico’s Lunchbox Book: The US HAEA Engagement team continues to work hard to make sure our youngest patients receive support in a way that keeps them engaged and entertained. This year, the US HAEA chapter teamed up with children’s author Caryn Sonberg Seiler to develop a three-book series to help kids learn about HAE in a relatable way. The [...]

News from the United States of America

2019-07-16T15:41:20+02:00July 16, 2019|United States of America|

From Managing Director Michelle Cuevas, US HAEA: Multiple events: This year’s hae day :-) generated a lot of excitement in the United States with a large number of HAEA members participating in and/or hosting events, educating others, and raising HAE awareness in their communities! We are very excited that hundreds of the new HAE E.R. Tool Kits have already been ordered, [...]

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