United States of America

News from the United States of America

2020-01-03T13:17:25+01:00December 30, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager It’s with tremendous gratitude that we wrap up an exciting year at the US HAEA filled with activities that brought us closer as a HAE family while continuing to push the boundaries on HAE discoveries, treatment, and care. We are now more committed than ever to help every HAE patient lead [...]

News from the United States of America

2019-10-11T23:07:38+01:00October 11, 2019|United States of America|

From Ianice Viel, Patient Advocate and Social Media Manager Nico’s Lunchbox Book: The US HAEA Engagement team continues to work hard to make sure our youngest patients receive support in a way that keeps them engaged and entertained. This year, the US HAEA chapter teamed up with children’s author Caryn Sonberg Seiler to develop a three-book series to help kids learn about HAE in a relatable way. The [...]

News from the United States of America

2019-07-16T15:41:20+01:00July 16, 2019|United States of America|

From Managing Director Michelle Cuevas, US HAEA: Multiple events: This year’s hae day :-) generated a lot of excitement in the United States with a large number of HAEA members participating in and/or hosting events, educating others, and raising HAE awareness in their communities! We are very excited that hundreds of the new HAE E.R. Tool Kits have already been ordered, [...]