South America

News from Central America and Caribbean

2024-05-03T09:25:27+02:00May 3, 2024|Central America and Caribbean, Costa Rica, Cuba, Dominican Republic, El Salvador, Guatemala, HAEi News, Panama, Puerto Rico, South America, Trinidad|

From Regional Patient Advocate Javier Santana HAEi delivered the first 2024 HAEi Regional Conference Americas in Panama City, Panama, where hundreds of patients, caregivers, doctors, and pharmaceutical representatives met to talk about advances of HAE in the Americas region, new treatments, and empowering patients, caregivers, and their families in the search for a better [...]

News from South America and Mexico

2024-05-03T09:10:41+02:00May 3, 2024|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]

News from Venezuela

2024-01-29T12:58:16+01:00January 29, 2024|Venezuela|

From Wilfredo Bocaranda, President, HAE Venezuela HAE Venezuela held meetings with the Authorities of the Military Hospital with Doctors Guillermo Boggiano, Rommy Boggiano, and their medical team to analyze the case of patients in Venezuela and offer an alternative treatment. The request for treatment is managed by the High Cost unit of Social Security [...]

News from Peru

2024-01-29T11:51:09+01:00January 29, 2024|Peru, South America|

From Carla M. Goachet Boulanger, HAE Peru This year, we have participated in 2 rare disease campaigns in the interior of the country. In February, we were in the city of Piura at the Cayetano Heredia Regional Hospital of Piura, and recently, in October, in the city of Arequipa at the Honorio Delgado Hospital. [...]

News from Paraguay

2024-01-29T11:49:41+01:00January 29, 2024|Paraguay, South America|

From HAE Paraguay In 2023, HAE Paraguay managed to contact the Health Sciences Research Institute, the Instituto de Investigaciones en Ciencias de la Salud (IICS) of the National University of Asunción (UNA), specifically with researchers from the Department of Immunology. A project entitled “Study of the C1 plasma inhibitor in patients with and without [...]

News from Chile

2024-01-17T12:17:56+01:00January 17, 2024|Chile, South America|

From HAE Chile This year, HAE Chile has progressed in several areas: The organization has contributed with a child’s story to the Brady Club book. The organization launched “Aeh Ayuda” in 2023 – a telephone system where calls for HAE emergencies are received 24 hours a day, seven days a week, and where patients [...]

News from Brazil

2024-01-12T14:00:46+01:00January 12, 2024|Brazil, South America|

From Raquel de Oliveira Martins, HAE Brazil (Abranghe) Public hearing about HAE: HAE Brazil, Abranghe, was invited to participate in the public hearing at the Health Committee of the Chamber of Deputies on 16 May 2023 to debate access to treatment for hereditary angioedema. At the Health Commission hearing, experts and diagnosed patients explained [...]

News from Peru

2023-11-11T11:12:49+01:00November 11, 2023|Peru, South America|

From Carla M. Goachet Boulanger, President, HAE Peru One of the goals of the 2023 proposed by the Board of Directors of HAE PERU was to encourage, motivate, and support the participation of youngsters from all over Peru in the various activities of the association, always respecting the voluntary initiative of each one of [...]

News from Central America and Caribbean

2023-11-10T12:12:48+01:00November 10, 2023|Argentina, Bolivia, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Honduras, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, South America, Trinidad, Uruguay, Venezuela, Virgin Islands|

From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

Go to Top