From HAE Brazil, ABRANGHE Meeting on Wheels: Awareness of HAE On May 19th, in celebration of hae day :-), we held the “Meeting on Wheels” event. During this action, we distributed information materials randomly at Parque da Independência – Museu do Ipiranga and Parque da Aclimação in São Paulo. We interacted with doctors, nurses, [...]
From Alejandra Menendez, HAE Argentina Argentina on hae day :-) (see images below) May 16th this year marked yet another wonderful opportunity to celebrate hae day :-) and raise awareness of HAE in Argentina. Several activities were carried out during the month to try to foster a greater understanding of hereditary angioedema and expose [...]
From Regional Patient Advocate Fernanda De Oliveira Martins These past months, I’ve been pushing key initiatives for HAEi, raising awareness, supporting patient groups, and advocating for improved access to HAE treatment. Here’s a breakdown of my main contributions in the past few months: HAEi has developed a great tool to support Member Organizations (MO) [...]
From Regional Patient Advocate Javier Santana After the 2024 HAEi Regional Conference Americas, held in Panama in March, HAE patient advocacy groups in the Central American and Caribbean region continue to work enthusiastically to achieve their goals in each country. There will be a lot to discuss when we meet at the 2024 HAEi [...]
From Carla M. Goachet Boulanger, Directora General, HAE Peru We begin the year 2024 by spreading the AEH with our young people from AEHPERU; Mafe Elera carried out an awareness HAE talk to her schoolmates. Kamila Salaverry carried out a dissemination campaign in the different health centers in the city of Trujillo, carrying the [...]
From HAE Paraguay On February 27, 2024, in a meeting with the Minister of Health Maria Teresa Baran, together with FEPPER, Hereditary Angioedema Paraguay expressed the desire to urgently have specific medication, care protocol, diagnostic methods, reference centers, and assigned professionals for the treatment of HAE. Please enjoy the pictures from HAE Paraguay’s commemoration [...]
From Edison Galarraga, HAE Ecuador For the benefit of the group of patients with Hereditary Angioedema without diagnosis in Ecuador, the ‘De Las Americas’ University (UDLA) based in Quito, the Capital of Ecuador, after meeting various ethical, legal, and methodological requirements and approval of resources, dated 6/march/2024, began the execution of the research project [...]
From HAE Brazil (Abranghe) Representing Brazil at the 2024 HAEi Regional Conference Americas, held in March 2024 in Panama City, there were 58 participants, most of them patients. This group, on behalf of ABRANGHE, included patients and caregivers who shared their experiences, accessed important information, explored relevant topics, and gained a deeper understanding of [...]
From HAE Argentina AEH Argentina participation in HAEi’s Conference of the Americas. From March 15th to 17th, AEH Argentina had a chance to attend HAEi’s Regional Conference of the Americas. Twenty-five members of our organization, including patients, caregivers, and representatives of our Youngsters’ group, traveled to Panamá to participate in the event. Carrying luggage [...]
From Regional Patient Advocate Javier Santana HAEi delivered the first 2024 HAEi Regional Conference Americas in Panama City, Panama, where hundreds of patients, caregivers, doctors, and pharmaceutical representatives met to talk about advances of HAE in the Americas region, new treatments, and empowering patients, caregivers, and their families in the search for a better [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
