From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]
The number of ACARE centers in Argentina has doubled as two more centers have been added to the HAEi world map. The new centers are Centro Médico Vitae in Buenos Aires and Instituto de Asma, Alergia y Enfermedades Respiratorias in Corrientes. For contact information, please see the map of Argentina. HAEi has just added [...]
I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating [...]
This input is dated May 2021 >> View content in Español In brief Name for organization: HAE Argentina 518 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Firazyr Fun/interesting facts Argentina is one of the countries with the largest amount of drinking water in [...]
The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years. Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]
First of all: We are moving towards adding Bolivia to the HAEi world map as Dr. Ariel Ramiréz has been registered as an HAE knowledgeable physician. You can find his contact information on haei.org. Furthermore, I am in contact with a woman who has both a brother, a sister and a mother with HAE [...]
From Regional Patient Advocate Fernanda de Oliveira Martins I organized a conference call for member organization leaders on 10 September 2020. Present were representatives from Argentina, Brazil, Chile, Ecuador, Mexico, Peru, Uruguay, and Venezuela. I have requested updated information on the number of patients, medication status etc., and at this point, I have received [...]
From Regional Patient Advocate Fernanda de Oliveira Martins COVID-19 has hit Latin America very hard. Unfortunately, many lives have been lost, including that of family members of people linked to HAE patient associations. In Mexico, more than 187,000 people lost their lives to COVID-19. In Brazil, the number is more than 120,000. In Peru, [...]
From President Alejandra Menendez: Considering the ongoing pandemic situation and the importance of experience sharing on 8 August 2020, HAE Argentina held a patient webinar to present the first reported case of COVID-19 in an HAE patient in our country. The meeting was co-hosted by Dr. Ricardo Zweiner, Dr. Jesica Cepeda and myself as [...]
Please have a look at Argentina on the HAEi map - more than 15 HAE knowledgeable physicians have been added: https://haei.org/hae-member-countries/argentina.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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