2024 was a challenging yet very productive year for our HAE community. Undoubtedly highlighted by two wonderful international events, the 2024 HAEi Regional Conference Americas and the 2024 HAEi Global Leadership Workshop and ACARE Global Aniogedema Forum 2024 set up the tone for a fantastic year. The beginning of the year was enhanced by the [...]
News from South America and Mexico From Regional Patient Advocate Fernanda De Oliveira Martins 2024 Highlights 2024 was a pivotal year for the HAE community in South America and Mexico. Our region's robust participation in both the 2024 Regional Conference Americas and the 2024 HAEi Global Leadership Workshop underscored the value of these [...]
From Regional Patient Advocate Fernanda De Oliveira Martins The past months were of preparation for the 2024 HAEi Global Leadership Workshop (GLW); preparing some Member Organization (MO) leaders for participation in the GLW program, translating the last guide for the participants, and planning the activities for the South America and Mexico breakout session. While [...]
From Alejandra Menendez, HAE Argentina Argentina on hae day :-) (see images below) May 16th this year marked yet another wonderful opportunity to celebrate hae day :-) and raise awareness of HAE in Argentina. Several activities were carried out during the month to try to foster a greater understanding of hereditary angioedema and expose [...]
From Regional Patient Advocate Fernanda De Oliveira Martins These past months, I’ve been pushing key initiatives for HAEi, raising awareness, supporting patient groups, and advocating for improved access to HAE treatment. Here’s a breakdown of my main contributions in the past few months: HAEi has developed a great tool to support Member Organizations (MO) [...]
From HAE Argentina AEH Argentina participation in HAEi’s Conference of the Americas. From March 15th to 17th, AEH Argentina had a chance to attend HAEi’s Regional Conference of the Americas. Twenty-five members of our organization, including patients, caregivers, and representatives of our Youngsters’ group, traveled to Panamá to participate in the event. Carrying luggage [...]
From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]
From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]
From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]
From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
