From Raquel de Oliveira Martins, HAE Brazil (Abranghe) Public hearing about HAE: HAE Brazil, Abranghe, was invited to participate in the public hearing at the Health Committee of the Chamber of Deputies on 16 May 2023 to debate access to treatment for hereditary angioedema. At the Health Commission hearing, experts and diagnosed patients explained [...]
From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]
From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]
From President Raquel de Oliveira Martins, HAE Brazil (ABRANGHE) By 31 December 2022, there were 1,841 people with HAE registered in Brazil. During the year, ABGRANGHE assisted more than 300 new patients, of whom 58 were confirmed with HAE, 78 were waiting for confirmation, and 169 were not confirmed.
From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]
From HAE Brazil (Abranghe) From January to August 2022, the number of diagnosed patients in Brazil has grown from 1,796 to 1,815. The number of members of HAE Brazil (ABRANGHE) has also increased during the same period – from 2,327 to the round figure of 2,400. Until recently, HAE patients in Brazil had access [...]
From HAE Brazil (Abranghe)We have produced some data from patients who sought out Abranghe for HAE registration and others for diagnostic guidance. The objective is to analyze data during the pandemic, from 2021 and 2020.
Short but sweet from HAE Brazil (ABRANGHE) Subcutaneous Berinert has been approved in Brazil for prophylactic treatment. It has been available for medical prescription to patients since 1 November 2021. >> Read more about available medication in Brazil on the country page for Brazil
From Regional Patient Advocate Fernanda De Oliveira Martins I keep encouraging leaders from the member organizations in my region to follow the HAEi Advocacy Academy exclusive courses – lately, I have been sending them information on course updates. I have supported Carla María Goachet Boulanger, President of HAE Peru, with some points regarding the [...]
I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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