In commemoration of hae day :-) 2020, HAE Colombia organized the first Instagram Live, in which the leader the organization, Jessika Torres spoke with the expert Dr. Margarita Olivares about HAE. Also, in the period leading up to hae day :-) 2020, the Colombian organization asked for pictures from the patients with the hashtag [...]
From Regional Patient Advocate Fernanda de Oliveira Martins I have held calls with member organization leaders in my region, which have been very successful. So far, the participants have included leaders from Brazil, Colombia, Mexico, Ecuador, Venezuela, Chile, and Paraguay. During the calls, we initiated the regional advisory group discussions and went through the Code of [...]
From Regional Patient Advocate Fernanda De Oliveira Martins I have held calls with member organization leaders in my region, which have been very successful. So far, the participants have included leaders from Brazil, Colombia, Mexico, Ecuador, Venezuela, Chile, and Paraguay. During the calls, we initiated the Regional Advisory Group discussions and went through the Code [...]
The HAE patient group in Colombia has now been legally constituted as Asociación Colombiana para Angioedema Hereditario. Jessika Torres Flórez is President of the organization while Carolina Torres Flórez is Vice President. See more at https://haei.org/location/hae-in-colombia.
One more South American country has been added to the HAEi world map as Colombia has joined the family. The HAE contact in Colombia is Jackeline Sus Moreno who can be contacted at moc.liamtoh@2suskcaj. If you want to take a closer look at the HAE organization in Colombia, please visit the national Facebook group at www.facebook.com/pages/Asociación-Colombiana- de-Angioedema-Hereditario/119669588091359.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
