From Regional Patient Advocate Fernanda De Oliveira Martins These past months, I’ve been pushing key initiatives for HAEi, raising awareness, supporting patient groups, and advocating for improved access to HAE treatment. Here’s a breakdown of my main contributions in the past few months: HAEi has developed a great tool to support Member Organizations (MO) [...]
From Carla M. Goachet Boulanger, Directora General, HAE Peru We begin the year 2024 by spreading the AEH with our young people from AEHPERU; Mafe Elera carried out an awareness HAE talk to her schoolmates. Kamila Salaverry carried out a dissemination campaign in the different health centers in the city of Trujillo, carrying the [...]
From Regional Patient Advocate Fernanda De Oliveira Martins The 2024 HAEi Regional Conference Americas in Panama was amazing. It was a powerful source of inspiration for HAE patients, caregivers, and everyone involved with HAE. The conference equipped Member Organizations (MO) with knowledge, fostered collaboration, and empowered the MOs to continue their work and make [...]
From Carla M. Goachet Boulanger, HAE Peru This year, we have participated in 2 rare disease campaigns in the interior of the country. In February, we were in the city of Piura at the Cayetano Heredia Regional Hospital of Piura, and recently, in October, in the city of Arequipa at the Honorio Delgado Hospital. [...]
From Carla M. Goachet Boulanger, President, HAE Peru One of the goals of the 2023 proposed by the Board of Directors of HAE PERU was to encourage, motivate, and support the participation of youngsters from all over Peru in the various activities of the association, always respecting the voluntary initiative of each one of [...]
From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]
From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]
From RPA Fernanda Oliveira de Martins I was invited to participate in a meeting organized by HAE Peru 27 February 2023. The main topic of the meeting was HAE in school children. I congratulate the organizers and invite everyone to watch the recording of the meeting (in Spanish) here. From Directora General Carla M. [...]
From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]
From Regional Patient Advocate Fernanda De Oliveira Martins I keep encouraging leaders from the member organizations in my region to follow the HAEi Advocacy Academy exclusive courses – lately, I have been sending them information on course updates. I have supported Carla María Goachet Boulanger, President of HAE Peru, with some points regarding the [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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