Peru

News from Peru

2024-01-29T11:51:09+01:00January 29, 2024|Peru, South America|

From Carla M. Goachet Boulanger, HAE Peru This year, we have participated in 2 rare disease campaigns in the interior of the country. In February, we were in the city of Piura at the Cayetano Heredia Regional Hospital of Piura, and recently, in October, in the city of Arequipa at the Honorio Delgado Hospital. [...]

News from Peru

2023-11-11T11:12:49+01:00November 11, 2023|Peru, South America|

From Carla M. Goachet Boulanger, President, HAE Peru One of the goals of the 2023 proposed by the Board of Directors of HAE PERU was to encourage, motivate, and support the participation of youngsters from all over Peru in the various activities of the association, always respecting the voluntary initiative of each one of [...]

News from Central America and Caribbean

2023-11-10T12:12:48+01:00November 10, 2023|Argentina, Bolivia, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Honduras, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, South America, Trinidad, Uruguay, Venezuela, Virgin Islands|

From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]

News from South America and Mexico

2023-11-10T12:09:39+01:00November 10, 2023|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support them in implementing some of HAEi’s wonderful tools and services. Chile has recently launched a “web2go” website. This solution is a quick process, free, and helps Member Organizations be more visible, increasing HAE awareness. You [...]

News from Peru

2023-07-12T16:06:10+02:00July 12, 2023|Peru, South America|

From RPA Fernanda Oliveira de Martins I was invited to participate in a meeting organized by HAE Peru 27 February 2023. The main topic of the meeting was HAE in school children. I congratulate the organizers and invite everyone to watch the recording of the meeting (in Spanish) here. From Directora General Carla M. [...]

News from South America and Mexico

2022-12-27T13:46:39+01:00December 27, 2022|Argentina, Bolivia, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, Paraguay, Peru, South America, Uruguay, Venezuela|

From Regional Patient Advocate Fernanda De Oliveira Martins It was amazing to be “Together Again” in Frankfurt, Germany, for the 2022 HAEi Global Leadership Workshop. I thank all the Member Organizations and the physicians from South America and Mexico for the effort and enthusiasm taken to the meeting, as well as the HAEi community [...]

News from South America and Mexico

2021-12-30T11:02:03+01:00December 30, 2021|Brazil, Chile, HAEi News, Mexico, North America, Peru, South America|

From Regional Patient Advocate Fernanda De Oliveira Martins I keep encouraging leaders from the member organizations in my region to follow the HAEi Advocacy Academy exclusive courses – lately, I have been sending them information on course updates. I have supported Carla María Goachet Boulanger, President of HAE Peru, with some points regarding the [...]

News from South America and Mexico

2021-10-06T09:43:37+02:00October 6, 2021|Argentina, Brazil, Chile, Colombia, Ecuador, HAEi News, Mexico, North America, Paraguay, Peru, South America, Uruguay, Venezuela|

I have been in contact with Lisa Facciolla from HAEA regarding the Brady Club. I’ve reached out to the member organizations in my region asking who are interested in receiving the kids’ material in Spanish. These countries have demonstrated interest: Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, Peru, Uruguay, and Venezuela. I am coordinating [...]

10 year achievements – Peru

2021-10-11T13:28:23+02:00July 15, 2021|10 year achievements, Peru, Regions, South America|

This input is dated May 2021 >> View content in Español In brief Name for organization: HAE Peru 46 members at 1 Jan 2021 Name of approved HAE treatments: Tranexamic acid Danazol (known as Danocrin) Kalbitor (known as ecallantide) Fun/interesting facts We are one of the countries [...]

2021 HAEi virtual regional workshop South America & Mexico, Central America & Caribbean

2021-07-05T15:16:59+02:00July 5, 2021|Argentina, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Mexico, North America, Panama, Paraguay, Peru, Puerto Rico, South America, Uruguay, Venezuela|

The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years.  Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]

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