News from South Asia, Germany, Austria, Switzerland, and Israel From Regional Patient Advocate Fanny Schappler 2024 Highlights I’m excited to have joined HAEi for the last quarter of 2024 and have witnessed tremendous growth in South Asia in the last few months; The Nepalese HAE patient group was officially created in October 2024 [...]
News from East Asia From Regional Patient Advocate Lim Yong Hao 2024 Highlights My region has seen significant progress in raising awareness and advancing research on HAE. A key highlight is the considerable media coverage across platforms like online news, YouTube, and social media, with at least 40 features promoting HAE awareness. Notably, [...]
My name is Khatera Naimi, and I am the representative of Afghan HAE patients. I was supposed to participate in this conference, but unfortunately, due to barriers in visa issuance, I could not come to Denmark and join you all. I represent a vulnerable group of patients who have no supporters in Afghanistan. Additionally, [...]
From Regional Patient Advocate Fanny Schappler My journey as a Regional Patient Advocate (RPA) I officially began my journey as a Regional Patient Advocate (RPA) in September 2024, supporting the following countries: Germany, Switzerland, Austria, Israel, India, Sri Lanka, Bangladesh, Nepal, Pakistan and Afghanistan. Stepping into this role felt exciting and daunting, but I [...]
From Regional Patient Advocates Anthony J. Castaldo and Henrik Balle Boysen Over the past several months, we have seen some very positive developments in the North America and Southeast Asia regions. Each of our countries brought a strong contingent of leaders to the 2024 HAEi Global Leadership Workshop, and we were delighted with the [...]
From Regional Patient Advocate Lim Yong Hao Over the past few months, I’ve been reminded repeatedly of the importance of connecting with others in patient advocacy and public awareness work. There’s something truly powerful about meeting and interacting with people in person. Even virtual interactions, whether via video conferencing or email, can still create [...]
On the occasion of hae day :-), a remarkable gathering of medical professionals and patients was arranged by HAE Pakistan at Kabir Restaurant in Peshawar. Miss Khatera Naimi represented HAE Afghanistan to raise awareness and offer support for individuals affected by Hereditary Angioedema. The regional event organizers, Mr. Shakeel Ahmad and Mr. Sami Khan [...]
From Regional Patient Advocate Lim Yong Hao The month of May holds special significance for the HAE community as hae day :-) is on 16 May. As a relatively new regional patient advocate (RPA), I was eager to see how to use this opportunity to bring the patient community closer and to raise awareness [...]
From Regional Patient Advocates Anthony J. Castaldo and Henrik Balle Boysen As many other Regional Patient Advocates mention, a focus of our activity with countries in these regions over the past months has been toward the 2024 HAEi Global Leadership Workshop. We’re delighted to see leaders from our organizations in North America and South [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
