News from India

2021-07-05T15:44:25+02:00July 5, 2021|India, South Asia|

The Department of Paediatrics and the Department of Dermatology, Venereology and Leprology, PGIMER, Chandigarh jointly celebrated hae day :-) by holding a virtual conference organized by the Hereditary Angioedema Society of India (HAESI). The e-conference included lectures on various aspects of HAE by national and international experts and faculty of Departments of Paediatrics and [...]

News from Asia Pacific

2021-07-05T14:49:26+02:00July 5, 2021|Australia, Australia/Oceania, Bangladesh, China, East & Southeast Asia, HAEi News, India, Japan, New Zealand, Pakistan, Singapore, South Asia, South Korea|

Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]

10 year achievements – India

2021-06-14T15:15:34+02:00June 14, 2021|India, Regions, South Asia|

This input is dated May 2021 In brief Name for organization: HAE India 70 members at 1 Jan 2021 Name of approved HAE treatments: Tranaxemic acid Danazol Stanozolol Fun/interesting facts Diverse and inclusive. People are more affectionate and helpful towards each other. We can experience all kinds of weather [...]

News from Asia Pacific

2021-04-05T19:56:37+02:00April 5, 2021|Australia/Oceania, China, East & Southeast Asia, HAEi News, India, Japan, Singapore, South Asia, South Korea, Taiwan|

During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]

News from Asia Pacific

2020-12-21T12:59:43+01:00December 21, 2020|Bangladesh, China, East & Southeast Asia, HAEi News, India, Indonesia, Japan, South Asia, South Korea|

The past few months have been busy in the Asia Pacific region with some exciting projects going on with the member organizations. I always enjoy catching up with each of the patient leads from all the member organizations to discuss plans and how to create awareness and education opportunities and build their capacity. I [...]

News from Asia Pacific

2020-10-05T11:39:54+02:00October 5, 2020|East & Southeast Asia, HAEi News, Hong Kong, India, Singapore, South Asia, South Korea, Taiwan|

The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]

News from Asia Pacific

2020-07-01T13:59:05+02:00June 29, 2020|Australia/Oceania, Bangladesh, East & Southeast Asia, HAEi News, India, Pakistan, Singapore, South Asia|

  From Regional Patient Advocate Fiona Wardman I had planned to hold the first HAEi Regional Workshop Asia Pacific in Singapore in April; however, due to COVID-19, the workshop has been postponed until we are all safe to travel again. I’m happy to report that we have two new patient groups in the Asia Pacific [...]

News from India

2020-04-11T15:21:14+02:00April 11, 2020|India|

From Regional Patient Advocate Fiona Wardman I attended and presented at the Third Scientific Congress of APSID during February in Chandigarh, India. While there, I met with patients and the administrative team from HAE India. We had some useful discussions, including ways of getting access to modern treatment by conducting a survey, and how important [...]

News from Asia Pacific

2020-04-07T15:58:28+02:00April 7, 2020|HAEi News, India, Singapore|

From Regional Patient Advocate Fiona Wardman I attended and presented at the Third Scientific Congress of APSID during February in Chandigarh, India. While there, I met with patients and the administrative team from HAE India. We had some useful discussions, including ways of getting access to modern treatment by conducting a survey, and how important [...]

News from India

2019-10-11T21:14:50+02:00October 11, 2019|India|

HAE India now has a Facebook page – have a look at https://www.facebook.com/HAEindia. The HAE International map has been updated with eight HAE knowledgeable physicians in India - please have a look at https://haei.org/hae-membercountries/india.

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