From Regional Patient Advocate Fiona Wardman I had planned to hold the first HAEi Regional Workshop Asia Pacific in Singapore in April; however, due to COVID-19, the workshop has been postponed until we are all safe to travel again. I’m happy to report that we have two new patient groups in the Asia Pacific [...]
From Regional Patient Advocate Fiona Wardman I attended and presented at the Third Scientific Congress of APSID during February in Chandigarh, India. While there, I met with patients and the administrative team from HAE India. We had some useful discussions, including ways of getting access to modern treatment by conducting a survey, and how important [...]
From Regional Patient Advocate Fiona Wardman I attended and presented at the Third Scientific Congress of APSID during February in Chandigarh, India. While there, I met with patients and the administrative team from HAE India. We had some useful discussions, including ways of getting access to modern treatment by conducting a survey, and how important [...]
HAE Bangladesh Angioedema Bangladesh Bangladesh · South Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in Bangladesh. HAE online in Bangladesh Visit us on Facebook [...]
From Regional Patient Advocate Fiona Wardman: I am in contact with physicians and patients in Bangladesh, as such, communication will continue to establish how to assist patients and educate physicians.
From Regional Patient Advocate Fiona Wardman: I am in contact with physicians and patients in Sri Lanka, as such, communication will continue to establish how to assist patients and educate physicians.
HAE India now has a Facebook page – have a look at https://www.facebook.com/HAEindia. The HAE International map has been updated with eight HAE knowledgeable physicians in India - please have a look at https://haei.org/hae-membercountries/india.
From Chief Regional Patient Advocate Fiona Wardman: Early March 2019 patients, their families, physicians, industry and other rare disease experts along with HAEi came together for the first HAE meeting in India. For most of the patients, this was also the first time they had met anyone outside of their family who knew exactly what [...]
By Fiona Wardman, HAEi Chief Regional Patient Advocate Early March 2019 patients, their families, physicians, industry and other rare disease experts along with HAEi came together for the first HAE meeting in India. For most of the patients, this was also the first time they had met anyone outside of their family who knew [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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United States of America
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HAE International (HAEi)
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Denmark
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