From Chen Jyun-Ting and Lim Yong Hao One of the biggest highlights in Taiwan in 2023 is the boost in the number of HAE-knowledgeable doctors and healthcare professionals. This happened because of training workshops organized and conducted by Dr. Shyur and colleagues, with the support of CSL Behring. The workshops were conducted between May [...]
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Friday evening Following the Keynote Presentation, the unique HAEi Youngsters Community split from the main patient and caregiver track, 60 young people and caregivers from 39 countries across the EMEA region joined together for networking, education, and fun! The Youngsters’ Advisory Group (YAG), comprised of 8 incredible young advocates, was critically involved in [...]
Dr. Danny Cohn was joined onstage by Prof. Henriette Farkas, one of the Scientific Committee Co-Chairs along with Dr. Cohn, and the following members of the Scientific Committee: Dr. Isabelle Boccon-Gibod, Dr. Marcin Stobiecki, Dr. Mauro Cancian, and Dr. Teresa Caballero, for the Expert Panel Q&A. Here we present a few [...]
Taking the stage for the next to last presentation of the day, Dr. Danny Cohn remarked on the inspiring nature of the day and how overwhelming he had found the levels of engagement and advocacy from all the participants. Introducing his talk, Dr. Cohn highlighted three reasons to search for new treatments: tolerability/safety [...]
The iconic Professor Bruce Zuraw opened his presentation with cosmology. Prof. Zuraw likened his awe at seeing an image of a black hole in his lifetime with the advances made in HAE. He told the audience that he had been working in HAE for more than 40 years and didn’t think so much [...]
The Patient and Caregiver Track consisted of many exciting topics – click on a topic to know much more about what went on during the sessions: To conclude the first evening of the HAEi EMEA Regional Conference, another double act was welcomed to the stage, this time Fiona Wardman, HAEi’s Executive Vice [...]
Co-chair Welcome, Saturday Morning Opening the Scientific Track, the Co-Chairs of the Scientific Committee, Prof. Henriette Farkas, Prof. Petra Staubach-Renz, and Dr. Danny Cohn, welcomed the more than 120 attending healthcare professionals from all across the region, from Algeria and Armenia to Ukraine and Zimbabwe. The Young Researcher/Investigator Award was presented to Dr. [...]
Of 26 abstracts submitted to the Scientific Committee, 19 were accepted for poster presentation, and another 5 were accepted for oral presentation, making the Scientific Track a hub for the latest data on the diagnosis and treatment of HAE. At the meeting, 18 posters were available, and 15 were presented in a fast [...]
Members of the Scientific Committee presented on key topics of interest as identified by the EMEA region Member Organizations. Diagnosing HAE – with and without labs by Associate Professor Jonny Peter A/Prof. Peter outlined two main take-home themes from his talk. The first diagnosis saves lives. The second is that some basic biology [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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