Date(s) - May 13, 2023 - May 17, 2023
HAE Spain (AEDAF) is pleased to announce that we will be organizing another hae day :-) event on the Camino de Santiago: the HAE Spain (AEDAF) Camino Walk 2023, which will take place from 13 to 17 May 2023.
The aim of hae day :-) on 16 May every year is to raise awareness of HAE among the general public and medical community in order to create an environment in which there is better care, earlier and more accurate diagnosis, and recognition that people with HAE can lead a healthy life.
This time we will be walking on the Portuguese route of the Camino de Santiago, an extensive network of pilgrimage routes leading to Santiago de Compostela in Galicia, in the northwestern part of Spain. We will be walking an average of 15 km per day for three days and have a short walk on the fourth day to the shrine of the Apostle Santiago (St. James) in the Cathedral of Santiago de Compostela.
One of the main reasons for us walking the Camino is the publicity we can generate as an hae day :-) event. The Camino Walk will serve as a statement that people with HAE, many of them frequently incapacitated by their attacks, are overcoming the obstacles to leading normal and fulfilling lives and can now feel free to undertake a journey of this nature.
The Camino Walk will be open for registration in January 2023 on a first come, first served basis. If you would like to register, we encourage you not to wait too long after registration opens, as we have limited seats available on the bus. The price will be 400 EUR per person (staying in a shared double or triple room) and 500 EUR per person in a single room.
AEDAF is looking forward to welcoming you to the Camino Walk 2023 from 13 to 17 May 2023.