Date(s) - Jul 25, 2019 - Jul 28, 2019
The next HAEA National Patient Summit will take place in Atlanta, Georgia 25-28 July 2019. The Summit will commemorate the 20th anniversary of dedicated patients joining together to establish what today is a strong and vibrant advocacy community. The Summit theme for 2019 is “Imagine the Possibilities”, and it will frame a program that will provide participants with a sense of the past, a realistic assessment of the present, and a positive look to the future. With the advent of new therapies and the prospect for continued innovation, the 2019 Summit will offer a unique opportunity to educate participants and motivate them to Imagine the Possibilities by evaluating their personal situation and exploring alternatives to improve their current quality of life. This 20th-anniversary gathering will offer an innovative format and unique programs that further unites the HAE community and guarantees a memorable and empowering experience. For this year, two exciting programs will be added: (1) a Professional- Scientific Track will offer informative sessions on the latest research, the new US HAEA Medical Advisory Board Treatment Recommendations, and HAE therapies, and (2) a three-day Global Youth Advocacy program designed to teach our youngest members from the US and national member organizations around the globe important advocacy techniques, boost leadership skills, friendships, and mutual support. Participants will earn an HAEi Advocacy Certification after the completion of the program.
The Summit agenda will focus on the HAEA’s foundational pillars: Health, Advocacy, Engagement, and Advances in Research, and cover the most pressing issues facing the US community.