HAE ITALY
Associazione volontaria per l’angioedema ereditario ed altre forme rare di angioedema – onlus

  ·  Italy  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Italy.

HAE online in Italy

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10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Italy’s achievements and hopes for the future

News and events

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– Language: All

Mar 15, 2024 - Mar 17, 2024 at All Day

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– Language: Czech
Hotel Globus
Praha Czech Republic

Apr 12, 2024 - Apr 14, 2024 at All Day

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– Language: Arabic
King Faisal Specialist Hospital & Research Centre
Riyadh 11564 Saudi Arabia

May 11, 2024 at 10:00 am - 4:30 pm

Local contacts

Nilla Ciairano
Vice President

Pietro Mantovano
President

Maria Ferron
Regional Patient Advocate Mediterranean, North Africa, Benelux, and British Isles

gro.ieah@norref.m

HAE in Italy

Available medication in Italy:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Orladeyo

HAE Places in Italy

  • Physicians - Italy

    Reference centers, hospitals and doctors (Physician)
  • Hospital - Torino, Italy

    Ospedale Mauriziano, Reparto di Immunologia e Allergologia (Hospital)
  • Hospital - Sassari, Italy

    Ospedale Civile SS. Annunziata, Centro Emofilia e Trombosi (Hospital)
  • Hospital - Salerno, Italy

    Azienda Ospedaliera Universitaria (Hospital)
  • Hospital - Roma, Italy

    Università di Roma Tor Vergata, UOC Reumatologia (Hospital)
  • Hospital - Pisa, Italy

    Azienda Ospedaliero-Universitaria Pisana, UO Immuno-Allergologia (Hospital)
  • Hospital - Pescara, Italy

    Ospedale Spirito Santo, Azienda U.S.L. Pescara, Centro di Riferimento Angioedema (Hospital)
  • Hospital - Palermo, Italy

    A.O. “Ospedali Riuniti Villa Sofia-Cervello”, Centro di Riferimento Regionale per la Diagnosi e la Cura dell’Angioedema Ereditario (Hospital)
  • Hospital - Padova, Italy

    Università degli Studi di Padova, Dipartimento di Medicina (Hospital)
  • Hospital - Napoli, Italy

    Università degli Studi di Napoli “Federico II”, Centro Interdipartimentale di Ricerca in Scienze Immunologiche di Base e Cliniche (CISI) (Hospital)
  • Hospital - Genova, Italy

    Azienda Ospedaliera San Martino (Hospital)
  • Hospital - Firenze, Italy

    Azienda Ospedaliero Universitaria Careggi, Angioedema Ereditario ed Acquisito (Hospital)
  • Hospital - Civitanova Marche, Italy

    Asur-Area Vasta 3, Unità Operativa Complessa di Allergologia (Hospital)
  • Hospital - Catania, Italy

    Policlinico Universitario di Catania, Centro per le Malattie metaboliche del Fegato e Malattie rare (Hospital)
  • Hospital - Cagliari, Italy

    Policlinico Universitario, Medicina Interna Allergologia e Immunologia Clinica (Hospital)
  • Hospital - Biella, Italy

    Ospedale Degli Infermi di Biella, SOS Allergologia (Hospital)
  • Hospital - Aosta, Italy

    Ospedale U. Parini, Ambulatorio di Allergologia e Immunologia Clinica (Hospital)
  • Hospital - Ancona, Italy

    Azienda Ospedaliero Universitaria, Ambulatorio Angioedema Ereditario (Hospital)
  • Hospital - Roma, Italy

    Università di Roma Tor Vergata, Cattedra e Unità, Operativa di Reumatologia (Hospital)
  • Hospital - Bari, Italy

    Università di Bari, U.O. Nefrologia R (Hospital)
  • Hospital - Messina, Italy

    Azienda Ospedaliera Universitaria Policlinico "G. Martino", Complessa di Allergologia e Immunologia Clinica (Hospital)
  • Hospital - Catania, Italy

    Ospedale S. Marta, Azienda universitaria-ospedaliera OVE (Hospital)
  • Hospital - Palermo, Italy

    Azienda Ospedaliera "V. Cervello" - U.O.C. di Patologia (Hospital)
  • Hospital - Milan, Italy

    Ospedale Luigi Sacco Univ. Milano, Ambulatorio Angioedema (Hospital)
  • HAE Italy

    Associazione volontaria per la lotta, lo studio e la terapia dell'angioedema ereditario (A.A.E.E. - onlus) (Member Organization)
  • ACARE Center - Padova, Italy

    Azienda Ospedale Università di Padova (ACARE Center)
  • ACARE Center - Milano, Italy

    IRCCS Istituti Clinici Scientifici Maugeri Milano (ACARE Center)
  • ACARE Center - Milano, Italy

    Sacco University Hospital Milan (ACARE Center)
  • ACARE Center - Monserrato, Italy

    Università di Cagliari (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life