HAE JORDAN
· Jordan · Middle East
On this page we have pulled together presently available information relevant for HAE patients and caregivers in Jordan.
10 year achievements
As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.
Click here to read about Jordan’s achievements and hopes for the future
News and events
The latest news from HAEi
Takeda announces late-breaking data from the Phase 3 SPRING study
Takeda announces late-breaking data from the Phase 3 SPRING study[...]
BioCryst announces new long-term efficacy and safety data
BioCryst Pharmaceuticals, Inc. announces new long-term efficacy and safety data[...]
BioCryst promotes ORLADEYO in the pan-Latin America region
BioCryst Pharmaceuticals, Inc. enters into an exclusive collaboration with Pint[...]
Oral FXIIa inhibitors from Kalvista show great promise
KalVista Pharmaceuticals, Inc. presents data for its oral Factor XIIa[...]
HAE events
Oct 6, 2022 - Oct 9, 2022 at All Day
HAE Emergency Cards in local languages
The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.
The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.
>> Find examples of the cards in multiple languages and download for free
HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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