HAE JORDAN
· Jordan · Middle East
On this page we have pulled together presently available information relevant for HAE patients and caregivers in Jordan.
10 year achievements
As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.
Click here to read about Jordan’s achievements and hopes for the future
News and events
The latest news from HAEi
UK National Institute for Health and Care Excellence recommends Orladeyo
The United Kingdom National Institute for Health and Care Excellence[...]
FDA lifts clinical hold for Phase 2 Trial of KVD824
The U.S. Food and Drug Administration (FDA) has lifted the[...]
Results from clinical trials for COVID-19 treatment with Ruconest
Pharming Group N.V. announces the topline results from two randomized,[...]
Launch of dedicated support platform for rare disease patients
Cycle Pharmaceuticals has launched Cycle Vita, a support platform for[...]
HAE events
Oct 1, 2021 - Feb 1, 2022 at 12:00 pm
HAE Emergency Cards in local languages
The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.
The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.
>> Find examples of the cards in multiple languages and download for free
HAE related topics that might interest you
Global Access Program
Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
Regional Patient Advocates
Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized
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