HAE NETHERLANDS
Vereniging voor Angio Oedeem

  ·  The Netherlands ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in The Netherlands.

HAE online in The Netherlands

Visit us on Facebook

Visit our Facebook group

Visit our website

Visit us on Instagram

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about the Netherlands’ achievements and hopes for the future

News and events

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– Language: Arabic
King Faisal Specialist Hospital & Research Centre
Riyadh 11564 Saudi Arabia

May 11, 2024 at 10:00 am - 4:30 pm

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– Language: All

May 16, 2024 at All Day

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– Language: Danish
ARoS
Aarhus Denmark

May 17, 2024 at 6:00 pm - 9:00 pm

Local contacts

Marijk Beekman-Kortekaas
President

moc.liamg@6791kjiram

Maria Ferron
Regional Patient Advocate Mediterranean, North Africa, Benelux, and British Isles

gro.ieah@norref.m

HAE in Netherlands

Available medication in Netherlands:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Cetor

HAE Places in Netherlands

  • Hospital - Amsterdam, Netherlands

    Academic Medical Center (Hospital)
  • HAE Netherlands

    HAE-QE Patiëntenvereniging (HAE Netherlands) (Member Organization)
  • ACARE Center - Amsterdam, Netherlands

    Amsterdam UMC Location AMC (ACARE Center)
  • ACARE Center - Ankara, Türkiye

    Ankara University, School of Medicine (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life