HAE PANAMA
Asociaciòn panameña de pacientes con Angioedema Hereditario

  ·  Panama  ·  Central America and Caribbean

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Panama.

HAE online in Panama

Visit our website

Visit us on Instagram

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Panama’s achievements and hopes for the future

News and events

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Mar 17, 2023 - Mar 19, 2023 at All Day

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May 4, 2023 - May 7, 2023 at All Day

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Sep 1, 2023 - Sep 3, 2023 at All Day

Local contacts

Muhammad Rawat
National contact

moc.liamtoh@dammahumtawar

Gilberto Price
National contact

moc.liamtoh@_ecirp

Rodrigo and Aleyda Milord
National contact

moc.liamg@525131yoor

Javier Santana
Regional Patient Advocate – Central America and the Carribean

gro.ieah@anatnas.j

More about Javier

HAE in Panama

Available medication in Panama:

  • Ruconest

HAE Places in Panama

  • Hospital - Panama, City Panama

    Hospital San Fernando INASA (Hospital)
  • Hospital - Panama City, Panama

    Instituto de Neumología y Alergías, S.A. (INASA), Clinica Hospital San Fernando (Hospital)
  • HAE Panama

    Fundación de Angioedema Hereditario de Panamá (HAE Panama) (Member Organization)
  • Physician - Panama, City Panama

    Dra. Olga Melcina Pino Barrara (Physician)
  • Physician - Panama, City Panama

    Dra. Marisela Williams (Physician)
  • Physician - Santiago de Veraguas, Panama

    Dr. Manuel Cruz (Physician)
  • Physician - Santiago de Veraguas, City Panama

    Dra. Georgina Diaz (Physician)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life