HAE PORTUGAL
Associação de Doentes com Angioedema Hereditário – ADAH
· Portugal · Europe
On this page we have pulled together presently available information relevant for HAE patients and caregivers in Portugal.
10 year achievements
As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.
Click here to read about Portugal’s achievements and hopes for the future
News and events
The latest news from HAEi
ORLADEYO recommended for public reimbursement in Québec, Canada
BioCryst Pharmaceuticals announced that ORLADEYO has been recommended for public[...]
KalVista Update on Potential HAE Medicine
KalVista Pharmaceuticals Gives Operational Update on Potential HAE Medicine KalVista[...]
Astria Therapeutics Announces Publication of STAR-0215 Preclinical Data
Astria Therapeutics Announces Publication of STAR-0215 Preclinical Data Astria Therapeutics,[...]
KalVista Pharmaceuticals to Present HAE Attack Journey Data at 2023 HAEi Regional Conference EMEA
KalVista Pharmaceuticals to Present HAE Attack Journey Data at 2023[...]
HAE events
Local contacts


Maria Ferron
Regional Patient Advocate Mediterranean, North Africa and British Isles
HAE Emergency Cards in local languages
The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.
The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.
>> Find examples of the cards in multiple languages and download for free
HAE related topics that might interest you
Global Perspectives
Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community
HAEi Advocacy Academy
Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate
HAEi Connect Member database
Free, secure online membership database and communications platform for HAEi’s member organizations
HAE Companion app
Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians
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