HAE PORTUGAL
Associação de Doentes com Angioedema Hereditário – ADAH

  ·  Portugal  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Portugal.

HAE online in Portugal

Visit us on Facebook

Visit our website

Visit us on Instagram

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Portugal’s achievements and hopes for the future

News and events

The latest news from HAEi

Click here to see a list of all HAEi news

HAE events

Click here to see a list of all HAEi events

*
*, *
HAE Spain (AEDAF) 25th General Assembly & Annual Meeting
– Language:

Apr 22, 2023 at 12:00 am

*
*, *
13th C1-inhibitor Deficiency & Angioedema Workshop
– Language: All

May 4, 2023 - May 7, 2023 at All Day

*
*, *
HAE Spain (AEDAF) Camino Walk 2023
– Language:

May 13, 2023 - May 17, 2023 at All Day

Local contacts

Inês Pessoa
President

moc.oohay@aossepseni
moc.liamg@hada.oacaicossa

Maria Ferron
Regional Patient Advocate Mediterranean, North Africa and British Isles

gro.ieah@norref.m

HAE in Portugal

Available medication in Portugal:

  • Berinert
  • Firazyr
  • Takhzyro
  • Tranexamic Acid

HAE Places in Portugal

  • Hospital - Viana do Castelo, Portugal

    ULSAM - Hospital de Santa Luzia (Hospital)

  • Hospital - Lisbon, Portugal

    EMGFA (Hospital)

  • Hospital - Évora, Portugal

    Hospital do Espírito Santo de Évora (Hospital)

  • Hospital - Horta, Portugal

    Hospital da Horta (Hospital)

  • Hospital - Tomar, Portugal

    Centro Hospitalar do Médio Tejo - Hospital Nossa Senhora da Graça – Tomar (Hospital)

  • Hospital - Cobre, Portugal

    CUF Cascais Hospital (Hospital)

  • Hospital - Lisbon, Portugal

    Hospital Lusíadas Lisboa (Hospital)

  • Hospital - Pombal, Portugal

    Urgência Hospital Distrital de Pombal - Centro Hospitalar de Leiria (Hospital)

  • Hospital - Lisbon, Portugal

    Hospital CUF Tejo (Hospital)

  • Hospital - Ponta Delgada, Portugal

    Hospital do Divino Espírito Santo (Hospital)

  • Hospital - Almada, Portugal

    Hospital Garcia de Orta (Hospital)

  • Hospital - Funchal, Portugal

    Serviço De Saúde Da Região Autónoma Da Madeira, E.P.E. (Hospital)

  • Hospital - Viseu, Portugal

    Centro Hospitalar Tondela – Viseu (Hospital)

  • Hospital - Barreiro, Portugal

    Centro Hospitalar Barreiro Montijo (Hospital)

  • Hospital - Vila Nova de Gaia, Portugal

    Centro Hospitalar Vila Nova de Gaia/Espinho (Hospital)

  • Hospital - Lisbon, Portugal

    Hospital Egas Moniz (Hospital)

  • Hospital - Angra do Heroísmo, Portugal

    Hospital de Santo Espírito da Ilha Terceira (Hospital)

  • Hospital - Faro, Portugal

    Centro Hospitalar Universitário do Algarve - Hospital de Faro (Hospital)

  • Physician - Faro, Portugal

    Dr. Macarena Piñero Saavedra (Physician)

  • Hospital - Porto, Portugal

    Hospital de São João (Hospital)

  • Hospital - Lisbon, Portugal

    Hospital de Santa Maria (Hospital)

  • HAE Portugal

    Associação de Doentes com Angioedema Hereditário – ADAH (HAE Portugal) (Member Organization)

  • Hospital - Setúbal, Portugal

    Centro Hospitalar de Setúbal, E.P.E (Hospital)

  • Hospital - Vila Nova de Gaia, Portugal

    Hospital da Arrábida - Gaia, SA (Hospital)

  • Hospital - Creixomil, Portugal

    Hospital da Senhora da Oliveira, E.P.E – Guimarães (Hospital)

  • Hospital - Aveiro, Portugal

    Centro Hospitalar do Baixo Vouga (Aveiro) (Hospital)

  • Hospital - Vila Franca de Xira, Portugal

    Hospital Vila Franca de Xira, EPE (Hospital)

  • Hospital - Castelo Branco, Portugal

    Unidade Local de Saúde de Castelo Branco (Hospital)

  • Hospital - Matosinhos, Portugal

    Unidade Local de Saúde de Matosinhos (Hospital)

  • Hospital - Portalegre, Portugal

    Unidade Local Saúde do Norte Alentejano, EPE (Hospital)

  • Hospital - Santa Cruz das Flores, Portugal

    Unidade Saúde Ilha Flores (Hospital)

  • Hospital - Lisbon, Portugal

    Centro Hospitalar de Lisboa Central, E.P.E - Hospital dona Estefânea (Hospital)

  • Hospital - Lisbon, Portugal

    Centro Hospitalar de Lisboa Central, E.P.E - Hospital de São José (Hospital)

  • Hospital - Lisbon, Portugal

    Centro Hospitalar de Lisboa Central, E.P.E - Hospital dos Capuchos (Hospital)

  • Hospital - Lisbon, Portugal

    Hospital CUF Descobertas, S.A (Hospital)

  • Hospital - Beja, Portugal

    Unidade Local Saúde do Baixo Alentejo, E.P.E (Hospital)

  • ACARE Center - Coimbra, Portugal

    Centro Hospitalar e Universitário de Coimbra (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

Stay tuned – sign up for our newsletter

BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS

Click here to sign up

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life