HAE SLOVENIA
Društvo bolnikov s HAE Slovenija je v nastajanju

  ·  Slovenia  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in Slovenia.

HAE online in Slovenia

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10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about Slovenia’s achievements and hopes for the future

News and events

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Oct 3, 2024 - Oct 6, 2024 at All Day

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Dec 12, 2024 at 12:00 am

Local contacts

Teja Iskra
President

moc.liamg@arksi.ajet

Natasa Angjeleska
Regional Patient Advocate – South Eastern Europe

gro.ieah@akselejgna.n

HAE in Slovenia

Available medication in Slovenia:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro

HAE Places in Slovenia

  • Hospital - Novo Mesto, Slovenia

    SB Novo Mesto (Hospital)
  • Hospital - Šempeter pri Gorici, Slovenia

    SB Nova Gorica, Urgentni center (Hospital)
  • Hospital - Izola Isola, Slovenia

    SB Izola, Urgentna ambulanta (Hospital)
  • Hospital - Celje, Slovenia

    SB Celje, Ambulanta IPP-Urgentni center (Hospital)
  • Hospital - Maribor, Slovenia

    UKC Maribor (Hospital)
  • Hospital - Ljubljana, Slovenia

    UKC Ljubljana, Centralna lekarna (Hospital)
  • HAE Slovenia

    HAE Slovenija / Drustvo bolnikov HAE Slovenija (Member Organization)
  • Physician - Golnik, Slovenia

    Dr. Mihaela Zidarn (Physician)
  • ACARE Center - Kranj, Slovenia

    University Clinic of Respiratory and Allergic Diseases Golnik (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life