HAE UK

  ·  United Kingdom  ·  Europe

On this page we have pulled together presently available information relevant for HAE patients and caregivers in United Kingdom.

HAE online in United Kingdom

Visit us on Facebook

Visit our Facebook group

Visit our Facebook group

Visit our website

Visit us on Twitter

10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about United Kingdom’s achievements and hopes for the future

News and events

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– Language: All

Mar 17, 2023 - Mar 19, 2023 at All Day

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– Language: All

May 4, 2023 - May 7, 2023 at All Day

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Sep 1, 2023 - Sep 3, 2023 at All Day

Local contacts

Rachel Annals
HAE UK Executive Officer

gro.kueah@slanna.lehcar

Maria Ferron
Regional Patient Advocate Mediterranean, North Africa and British Isles

gro.ieah@norref.m

HAE in United Kingdom

Available medication in United Kingdom:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • Orladeyo

HAE Places in United Kingdom

  • Hospitals - United Kingdom

    Hospitals - United Kingdom (Hospital)
  • Physicians - United Kingdom

    Physicians - United Kingdom (Physician)
  • HAE United Kingdom

    HAE UK (HAE United Kingdom) (Member Organization)
  • ACARE Center - London, United Kingdom

    Barts Health NHS Trust (ACARE Center)
  • ACARE Center - London, United Kingdom

    The London Allergy & Immunology Center (ACARE Center)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

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HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life