HAE UNITED STATES OF AMERICA
The US Hereditary Angioedema Association

  ·  United States of America  ·  North America

On this page we have pulled together presently available information relevant for HAE patients and caregivers in United  States of America.

HAE online in United States of America

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10 year achievements

As HAEi celebrated the 10th hae day :-) in 2021 we asked our Member Organisations tell us about the achievements of the past 10 years and their hopes for the future.

Click here to read about United States of America’s achievements and hopes for the future

News and events

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– Language: All

Oct 6, 2022 - Oct 9, 2022 at All Day

Local contacts

Anthony J. Castaldo
President & CEO

gro.aeah@odlatsaca

Michelle Cuevas
Senior Executive VP & COO

gro.aeah@ellehcim

Lois Perry
Director of Health

gro.aeah@yrrepsiol

HAE in United States of America

Available medication in United States of America:

  • Ruconest
  • Berinert
  • Firazyr
  • Cinryze
  • Takhzyro
  • HAEGARDA
  • Kalbitor
  • Orladeyo

HAE Places in United States of America

  • ACARE Center - Hershey (PA), USA

    Department of Asthma and Immunology, Penn State University (ACARE Center)
  • Care Center - San Diego, CA, USA

    US HAEA Angioedema Center at UC San Diego (Hospital)
  • HAE in Michigan, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in North Dakota, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in South Dakota, USA

    John Williamson, Patient Services Representative (Member Organization)
  • Physician in the United States of America

    Physician (Physician)
  • Hospital in the United States of America

    Hospital (Hospital)
  • Care Centers in the United States of America

    Care Centers (Hospital)
  • HAE in Maine, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Vermont, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in New Hampshire, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in New York, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Massachusetts, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Pennsylvania, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Connecticut, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in New Jersey, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Maryland, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Rhode Island, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Washington DC, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Delaware, USA

    The US Hereditary AngioedemaAssociationn (Member Organization)
  • HAE in Virginia, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in North Carolina, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in South Carolina, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Georgia, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Florida, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in West Virginia, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Ohio, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Indiana, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Kentucky, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Tennessee, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Alabama, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Wisconsin, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Illinois, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Mississippi, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Minnesota, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Iowa, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Missouri, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Arkansas, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Louisiana, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Nebraska, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Kansas, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Oklahoma, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Texas, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Colorado, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in New Mexico, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Wyoming, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Utah, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Arizona, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Montana, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Idaho, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Nevada, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in California, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Oregon, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Washington, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE in Alaska, USA

    The US Hereditary Angioedema Association (Member Organization)
  • HAE United States of America

    The US Hereditary Angioedema Association (US HAEA) (Member Organization)
  • HAE in Hawaii, USA

    The US Hereditary Angioedema Association (Member Organization)

HAE Emergency Cards in local languages

The HAE Emergency Card contains clear and simple information about HAE and treatment required during an attack. It also contains space for patients to add personal information such as emergency contact details and their specialist treatment center.

The Emergency Card has been translated into a number of languages and can help you to quickly and effectively let healthcare professionals know that you have a diagnosis of HAE and what treatment should be considered.

>> Find examples of the cards in multiple languages and download for free

HAE related topics that might interest you

Global Access Program

Helping to change the lives of patients with hereditary angioedema (HAE) with a medication access program

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

Regional Patient Advocates

Constantly strive to improve the situation for HAE friends all over the world – no matter how they are organized

Stay tuned – sign up for our newsletter

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HAE Global Conference 2018

This 4th HAE conference was record breaking: A total of 736 patients and care givers participated from no less than 57 countries

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language