Rachel Annals has been appointed as Assistant to the Chief Regional Patient Advocate. This action allows HAEi to accommodate the phenomenal growth of the Regional Patient Advocacy program. 

Rachel will support the Chief Regional Patient Advocate, Fiona Wardman, and the Regional Patient Advocates, as they implement the programs and services that fuel the global HAEi patient advocacy movement.

Rachel also serves as the Executive Officer of HAE UK. She is focused on patient advocacy and one-to-one support as well as organizing patient events and projects. 

Rachel, who is an HAE patient herself, lives with her daughter in Bridgwater, United Kingdom.

In January 2020, Steen Bjerre left HAEi to pursue other opportunities. However, he has missed his many good HAE contacts, so he has returned to the role of Communications Manager. Among other things, Steen is responsible for content for Global Perspectives and other HAEi media, maintenance of websites and databases as well as general communication tasks including the creation of reports. He is also involved in planning and conducting global activities.

Based on a BA in Journalism, Steen was with the first wave of independent television and radio stations in Denmark. After years with advertising agencies, he established a communications company in 1992. Steen worked for HAEi 2012 to 2020 and returned 1 February 2021.