HAE Treatment in Senegal
The following treatments are registered/licensed:
Update from Regional Patient Advocate Patricia Karani:
October 2019: Discussions are continuing with a doctor in Senegal who is linking me with patients, and working on ways to develop HAE awareness between healthcare professionals and colleagues, and the start of a steering committee.
July 2019: I got a chance to raise awareness at the 6th African Society of Immunodeficiencies (ASID) Congress that was held in Dakar, Senegal in April 2019. At the event Dr Priya Bowry from the Allergy Clinic in Nairobi, Kenya got to sensitize the doctors and nurses on what HAE is and how to carry about proper diagnosis and proper treatment in an African setup. I presented on my patient perspective to diagnosis in Kenya.
The conference was well attended by over 200 participants from the African region including doctors who are members of the African Society for Primary Immunodeficiency as well as nurses from the International Nursing Group for Immunodeficiencies (INGID) and the International Patient Organisation for Primary Immunodeficiencies (IPOPI) members. There were also students doing their masters in medicine present.
I had the pleasure of being honored with a gift for my work and participation in raising awareness and sharing the quest to save the lives of patients with Primary Immunodeficiencies.