Keep yourself updated with HAEi news and events

HAEi News Archive

5Jan, 2024

HAEi Research in 2023

It has been a research and science-filled year for HAEi. We’ve been active with our research programs, have had [...]

2Jan, 2024

In Their Own Words

As part of the Youngsters' Community Review and Round-up in the December issue of Global Perspectives, two of the [...]

2Jan, 2024

All about Women with HAE

In the December 2023 issue of Global Perspectives, we introduced a new, occasional feature called Did You Know? The [...]

22Dec, 2023

ACARE Answers

We asked ACARE centers from our Asia Pacific, Americas, and EMEA regions to tell us a little about their [...]

22Dec, 2023

All about ACARE

Hello everyone. My name is Rachel. You might’ve met me. I’ve lived with HAE from a very young age, [...]

21Dec, 2023

A New Lease of Life

Across the globe, the HAEi family of Member Organizations (MO) has grown to 99. With such a large number [...]

21Dec, 2023

Advocacy is Proactivity

At the recent 2023 HAEi Regional Conference EMEA, we got to sit down with HAEi Leadership (from left), Henrik [...]

11Nov, 2023

Postcards from Munich and Beyond!

Phew, it has been a whirlwind of activity in the Youngsters’ Community. We’ve just waved goodbye to our friends [...]

11Nov, 2023

Update from HAEi’s Global Operations

Update from HAEi’s Executive Vice President Global Operations and Chief Compliance Officer, Jørn Schultz-Boysen Great to see so many [...]

11Nov, 2023

Update from HAEi’s Global Advocacy

Update from HAEi’s Executive Vice President Global Advocacy and Chief Diversity Officer, Fiona Wardman Advocacy is an essential tool [...]

10Nov, 2023

News from Eastern Asia

From Regional Patient Advocate Lim Yong Hao I began my official Regional Patient Advocate (RPA) journey in June of [...]

10Nov, 2023

News from South Eastern Europe

From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but [...]

10Nov, 2023

News from Sub Sahara Africa

From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from [...]

10Nov, 2023

News from South America and Mexico

From Regional Patient Advocate Fernanda De Oliveira Martins I am working with many countries in my region to support [...]

24Oct, 2023

EMEA – Let’s Take Action

Across 1-3 September, the 2023 HAEi Regional Conference EMEA motivated an audience of around 650 HAE patients, caregivers, [...]

7Sep, 2023

KalVista Update on Potential HAE Medicine

KalVista Pharmaceuticals Gives Operational Update on Potential HAE Medicine KalVista Pharmaceuticals, Inc., a clinical-stage pharmaceutical company, provided an operational update [...]

3Aug, 2023

BioCryst corporate update

BioCryst Pharmaceuticals provided a corporate update during reporting of financial results for the second quarter ended June 30, 2023 Charlie [...]

Upcoming Global HAE Events

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– Language: Czech
Hotel Globus
Praha Czech Republic

Apr 12, 2024 - Apr 14, 2024 at All Day

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– Language: Arabic
King Faisal Specialist Hospital & Research Centre
Riyadh 11564 Saudi Arabia

May 11, 2024 at 10:00 am - 4:30 pm

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– Language: All

May 16, 2024 at All Day

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– Language: All

Oct 3, 2024 - Oct 6, 2024 at All Day

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