News & Events

News & Events2019-02-26T19:48:26+00:00

Keep yourself updated with HAEi news and events

HAEi News Archive

7Apr, 2019

News from Mediterranean

From Maria Ferron, regional patient advocate, Mediterranean MOROCCO 19 January 2019 AMMAO (HAE Morocco) held the first meeting as an official association [...]

7Apr, 2019

News from Gulf Region and Middle East

From Rashad Matraji, regional patient advocate, Gulf Region and Middle East LEBANON  Together with a Lebanese doctor Rashad has been working [...]

7Apr, 2019

News from Central & Eastern Europe

From Michal Rutkowski, regional patient advocate, Central & Eastern Europe LITHUANIA Michal is in contact with a doctor from Vilnius who [...]

7Apr, 2019

News from South Eastern Europe

From Natasa Angjeleska, regional patient advocate, South Eastern Europe SERBIA In February 2019 Natasa participated in the annual patient meeting of HAE [...]

7Apr, 2019

News from Mexico and South America

From Fernanda de Oliveira Martins, Regional Patient Advocate, Mexico and South America GENERAL Fernanda is presently working on the agenda for [...]

7Apr, 2019

News from Asia Pacific

From Fiona Wardman, Regional Patient Advocate, Asia Pacific TAIWAN Plans are being made for HAEi to meet with a Taiwanese doctor [...]

7Apr, 2019

The Value of Prophylactic Therapy

A study sponsored by the US HAEA and HAEi assess the value of the new subcutaneous prophylaxis therapies to on-demand [...]

7Apr, 2019

Seven in Ten!

By William R. Lumry, M.D., Allergy Immunology Specialist, Clinical Professor of Internal Medicine, University of Texas Southwestern Medical School. Seven safe [...]

7Apr, 2019

HAEi brings hope to India

By Fiona Wardman, HAEi Chief Regional Patient Advocate Early March 2019 patients, their families, physicians, industry and other rare [...]

7Apr, 2019

News from Sub-Sahara Africa

From Patricia Karani, Regional Patient Advocate, Sub-Sahara Africa SOUTH AFRICA The first patient meeting was held 14 March 2019 in Cape [...]

14Jan, 2019

HAEi South Eastern Europe Workshop 2018

By Natasa Angjeleska, HAEi Regional Patient Advocate South Eastern Europe Before being nominated as HAEi Regional Patient Advocate for the [...]

10Jan, 2019

Takeda Completes Acquisition of Shire

Takeda Pharmaceutical Company Limited has completed its acquisition of Shire plc, becoming a global, values-based, R&D-driven biopharmaceutical leader headquartered in [...]

14Dec, 2018

Enlarged Phase 2 Trial on Track

KalVista Pharmaceuticals, Inc. has provided an operational update and released financial results for the fiscal second quarter ended October 31, [...]

16Nov, 2018

Oral formulation rapidly absorbed

BioCryst Pharmaceuticals, Inc. presents data showing that an oral formulation of BCX7353 was rapidly absorbed and exhibited a long half-life, two important characteristics [...]

20Sep, 2018

Health Canada authorizes TAKHZYRO

Shire plc and Shire Pharma Canada ULC (Shire Canada) announces that following priority review, Health Canada has authorized TAKHZYRO (lanadelumab [...]

24Aug, 2018

US FDA approves TAKHZYRO

Following priority review, the U.S. Food and Drug Administration (FDA) has approved TAKHZYRO (lanadelumab-flyo) injection, for prophylaxis to prevent attacks [...]

18May, 2018

Question #1

15May, 2018

Pharming supports haeday :-)

On May 16th HAE patient organizations from around the world, led by HAEi (The international HAE patient organisation), come together to [...]

11Apr, 2018

HAEi Jakobsweg Walk 2018

After the successful HAEi/AEDAF Camino Walk on the Camino de Santiago in northwestern Spain in May 2016 and May 2017, [...]

23Feb, 2018

FDA accepts BLA for Lanadelumab

The U.S. Food and Drug Administration (FDA) has accepted the Biologics License Application (BLA) and granted priority review for Lanadelumab [...]

11Jan, 2018

Verseon presents HAE program

Verseon has presented preclinical results in its HAE program at the 2018 Biotech Showcase in San Francisco, USA. The data show [...]

Upcoming Global HAE Events

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– Language: Global

Apr 1, 2019 - May 31, 2019 at All Day

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– Language: English

May 23, 2019 - May 26, 2019 at All Day

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– Language: English
Danada Forest Preserve
Wheaton IL United States

Jun 15, 2019 at All Day

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– Language: Russian

Jun 19, 2019 - Jun 20, 2019 at All Day

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– Language: English

Jul 25, 2019 - Jul 26, 2019 at All Day

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– Language: English

Jul 25, 2019 - Jul 28, 2019 at All Day

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– Language: English
Piedmont Park
Atlanta GA United States

Jul 28, 2019 at All Day

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– Language: English
Overton Park
Memphis TN United States

Sep 7, 2019 at All Day

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– Language: English
Burke Lake Park
Fairfax Station VA United States

Sep 14, 2019 at All Day

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– Language: English, Macedonian

Sep 27, 2019 - Sep 29, 2019 at All Day

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– Language: English
Roger Williams Park – Carousel Village
Providence RI United States

Oct 5, 2019 at All Day

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– Language: English, Polish

Oct 18, 2019 - Oct 20, 2019 at All Day

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– Language: Danish, Norwegian, Swedish

Nov 8, 2019 - Nov 10, 2019 at All Day

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– Language: English

May 14, 2020 - May 17, 2020 at All Day

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