News2019-07-09T13:26:36+02:00

NEWS

COVID-19 (novel coronavirus)

February 27, 2020|HAEi News|

HAE International is carefully monitoring the situation regarding the COVID-19 virus to the extent that it could affect our upcoming meetings and conferences. This includes: 2020 HAEi Regional Workshop North Africa in Algeria, 6-8 [...]

Intellia presents preclinical results

February 21, 2020|HAEi News|

Intellia Therapeutics, Inc. is presenting preclinical results for its CRISPR/Cas9-Based Therapy for HAE. “The data from our HAE development program reinforce the modularity of Intellia's non-viral delivery genome editing platform and how it is enabling [...]

HAEGARDA now available in the province of Québec

February 7, 2020|Canada, HAEi News|

HAEGARDA (C1 Esterase Inhibitor Subcutaneous [Human]) is now available in the province of Québec, Canada. “The availability of a new treatment option to help health care professionals and patients prevent HAE attacks is an important [...]

News from Canada

December 30, 2019|Canada|

From Executive Director Peter Waite, Canadian Hereditary Angioedema Network: The Canadian Hereditary Angioedema Network has updated its 2014 Canadian Hereditary Angioedema Guideline with an expanded scope to include the management of HAE patients worldwide. It is a collaboration of Canadian [...]

News from Cuba

December 30, 2019|Cuba|

From HAE patient Rosa María Perez: Epinephrine, Hydrocortisone, Prednisone, Benadryl ... with every health crisis there is a bombardment of medicines with which nothing is resolved. The edema was quick – “in crescendo” – until it reached a [...]

News from Brazil

December 30, 2019|Brazil|

From Raquel Martins, President of Abranghe - Angioedema Hereditário Brasil, HAE International has received the very good news that Takhzyro (Lanadelumab) is now approved in Brazil for the treatment of HAE. The approval comes from the Brazilian Health Regulatory Agency [...]

News from Japan

December 30, 2019|Japan|

From President Beverley Yamamoto, HAE Japan (HAEJ): HAEJ applied for the 3rd PASE Award from EFPIA (European Federation of Pharmaceutical Industries and Associations) – PASE is Patient Advocacy Support by EFPIA. HAEJ applied for a project on paediatric [...]

News from Colombia

December 30, 2019|Colombia|

The HAE patient group in Colombia has now been legally constituted as Asociación Colombiana para Angioedema Hereditario. Jessika Torres Flórez is President of the organization while Carolina Torres Flórez is Vice President. See more at https://haei.org/location/hae-in-colombia.

News from South Africa

December 30, 2019|South Africa|

From President Adrienne de Jongh, HAE South Africa: The Global Access Program importing Ruconest is now running smoothly and proving to be very successful. There is a fair amount of administration involved though and we are grateful that the [...]

News from Switzerland

December 30, 2019|Switzerland|

The 18th General Assembly of the Swiss HAE Association took place 8 November 2019. President Helene Saam welcomed 22 members. All agenda items were decided unanimously. The next year’s meeting will take place in Zurich on 20 June 2020 [...]

News from Venezuela

December 30, 2019|Venezuela|

Fundacion AEH de Venezuela (HAE Venezuela) has formed an alliance with the Venezuelan Society of Asthma, Allergies and immunology (SVAAI) and the Venezuelan Primary Immunodeficiency Network (RVIDP).

News from Hong Kong

December 30, 2019|Hong Kong|

From Sandy Chan, HAE HK: HAE HK was formed in August 2019 by patients in Hong Kong with HAE and incorporated as a limited company in Hong Kong on 7 November 2019. Tax exemption will be applied. HAE [...]

News from Pakistan

December 30, 2019|HAEi News|

We are happy to inform you that HAE International has been joined by country no. 84. A warm welcome to Pakistan, represented by national contact Moazzam Farooq. You can follow HAE Pakistan via https://www.facebook.com/groups/142032642667972.

2019 HAEi Regional Workshop Central Eastern Europe

December 30, 2019|Armenia, Belarus, Belgium, Czech Republic, Estonia, Georgia, Hungary, Kasakhstan, Lithuania, Poland, Russia, Slovakia, The Netherlands, Ukraine|

By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. [...]

2019 HAEi Regional Workshop South Eastern Europe

December 30, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 [...]

News from Costa Rica

December 30, 2019|Costa Rica|

From Regional Patient Advocate Javier Santana: Costa Rica has had its 1st Costa Rican Allergy Congress where Dr. Mario Martínez, who helps the group of HAE patients in the country, offered a comprehensive presentation on HAE to all attending [...]

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