NEWS
News from the UK
From Angela Metcalfe, CEO of HAE UK Goodness, it has been a very busy year for HAE UK! As CEO, I was delighted to attend the 2023 HAEi Regional Conference EMEA in Munich at [...]
News from Tunisia
From HAE Tunisia The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 [...]
News from Switzerland
From Helene Saam, President, HAE Switzerland The highlights in 2023 for the Swiss HAE Association were as follows: Production of the film ‘HAE - Simply Explained’ >> Watch the film with German, English, French, [...]
News from South Korea
From Soojin Min, HAE Korea Start of Welfare for the Weak! National Assembly Debate to Improve the Quality of Life of Patients with Rare Diseases in Medical Blind Spots: On Tuesday, 12 September, The [...]
News from South Africa
From Janice Strydom, HAE South Africa HAE SA started 2023 with the exciting announcement that icatibant, our first treatment for acute attacks of HAE, had been registered. This is a significant milestone for our [...]
News from Slovenia
From Teja Iskra, HAE Slovenia After years of struggle and struggle, my family once again helped me so that I could fulfill my dreams. Finally, I can proudly say that the HAE Slovenia Patient [...]
News from Singapore
From Lim Yong Hao, HAE Singapore HAE Singapore’s membership has recently broken into double digits with 11 members, consisting of patients and caregivers. We are slowly growing and hope to reach and engage the [...]
News from Denmark, Norway and Sweden
From Jørn Schultz-Boysen, Vice President, HAE Scandinavia “Stronger Together”: Highlights from the 2023 Scandinavian Conference by HAE Scandinavia in Malmö: The welcoming city of Malmö, Sweden, played host to a memorable gathering from 10-12 [...]
News from Russia
From HAE Russia September: HAE Russia, together with the National Medical Research Center for Pediatric Hematology, Oncology and Immunology, named after Dmitry Rogachev, began a sociological study to study the quality of life and psychological [...]
News from Puerto Rico
From HAE Puerto Rico The Immunology and Allergy Association of Puerto Rico had an annual congress where the HAE topic was part of the agenda. Many doctors made some presentations and talked about the [...]
News from Poland
From Michal Rutkowski, HAE Poland In late June/early July, HAE Poland (also known as the Swelling Beautifully Association) organized the first-ever HAE Poland Youngsters Summer Workshop. This event was part of Dominika Blacharska’s HAEi [...]
News from Peru
From Carla M. Goachet Boulanger, HAE Peru This year, we have participated in 2 rare disease campaigns in the interior of the country. In February, we were in the city of Piura at the [...]
News from Paraguay
From HAE Paraguay In 2023, HAE Paraguay managed to contact the Health Sciences Research Institute, the Instituto de Investigaciones en Ciencias de la Salud (IICS) of the National University of Asunción (UNA), specifically with [...]
News from Panama
From HAE Panama During the celebration of the Central American and National Congress of Otorhinolaryngology, held in Panama, 16-18 November 2023, the topic of HAE was addressed by Dr. Olga M. Barrera, medical advisor [...]
News from Pakistan
From HAE Pakistan HAE Pakistan has been busy in the country to educate and create awareness of HAE. Mr. Shakeel Afridi has arranged productive awareness sessions in medical colleges and institutes. The first session [...]
News from the Netherlands
From Maria (Marijk) Beekman-Kortekaas, President HAE The Netherlands It’s hard to believe that we’re already wrapping up the year. So many great things have happened since January. We worked hard to reinvigorate HAE The [...]
News from Mozambique
From Daniella Assa, HAE Mozambique Attending the 2023 HAEi Regional Conference EMEA that was held this year in Munich, Germany, gave us support, encouragement, and the necessary tools to advocate for HAE in Mozambique. [...]
Successful 2023 HAEi Regional Conference APAC
HAEi’s global advocacy philosophy – think globally, act regionally – was transformed into reality on 17-19 March at the 2023 HAEi Regional Conference APAC held in Bangkok, Thailand. Over 250 participants from 22 countries [...]
Successful 2023 HAEi Regional Conference EMEA
Across 1-3 September 2023, the 2023 HAEi Regional Conference EMEA motivated an audience of around 650 HAE patients, caregivers, physicians/scientists, and industry representatives from 61 countries to Take Action in the knowledge that everyone [...]
News from Ireland
From Bettina Carty, HAE Ireland It has been a quick year, and my first one as the national contact in Ireland. Our group is small but growing all the time, and with the help [...]
News from Hungary
From HAE Hungary The Hungarian HAE Patient Association held its yearly patient meeting on 22 November in an online form. Thanks to HAEi, who helped to set up the Zoom meeting for the invited [...]
News from Georgia
From HAE Georgia Website Launch: We are thrilled to announce the launch of the HAE Georgia website. Leveraging the free templates and web hosting provided by HAEi, our community now has a dedicated online [...]
Ionis announces positive topline results from study of investigational donidalorsen, and prepares submissions to FDA and EMA
Ionis announces positive topline results from Phase 3 OASIS-HAE study of investigational donidalorsen, and prepares submissions to US FDA and European Medicines Agency Ionis Pharmaceuticals Inc announced positive topline results for the Phase 3 [...]
Pharvaris announces FDA lifting of the clinical hold of deucrictibant for the prophylactic treatment of HAE attacks
Pharvaris announces FDA lifting of the clinical hold of deucrictibant for the prophylactic treatment of HAE attacks Pharvaris today announces that the US Food and Drug Administration (FDA) has lifted the clinical hold on [...]
News from China
From HAE China In 2023, we promoted through official accounts and celebrities on multiple well-known social media platforms while organizing various offline activities to expand our organizational influence and continuously achieve good results. The [...]
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Upcoming events
Italy
Apr 20, 2024
Regional Angioedema Day in Rome
Saudi Arabia
May 11, 2024
HAE Patient Workshop; HAE Saudi Arabia
May 16, 2024
hae day :-) 2024
Denmark
May 17, 2024
En tur i Regnbuen med HAE Scandinavia
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