From Regional Patient Advocate Fiona Wardman
I attended and presented at the Third Scientific Congress of APSID during February in Chandigarh, India. While there, I met with patients and the administrative team from HAE India. We had some useful discussions, including ways of getting access to modern treatment by conducting a survey, and how important it is to have all patients in India a member of HAE India with their details in HAEi Connect.
I am currently organizing the first HAEi Regional Workshop Asia Pacific in Singapore. As most of the countries in the region are new to HAE International, this workshop will bring together the leads from each country. During the workshop, they will learn about the HAE International tools and resources, get to know more about their neighboring country’s challenges, learn about APARDO and the APEC Rare Disease Action Plan, and work on plans for each of their countries.
