From HAE Australasia
HAE Australasia has held two in-person patient and carers meetings in February. The first meeting was held in Sydney, Australia, on 5 February, the main venue with presenters in Sydney. Brisbane and Melbourne were linked via Zoom. Other patients and carers around Australia and New Zealand could dial in to watch presentations from Dr. Connie Katelaris (Australia), Dr. Marc Riedl (USA), a genetic counsellor, clinical psychologist, gynecologist and obstetrician, and HAEi, and a patient story. HAE Australasia’s CEO presented on the achievements of our member organization over the last 10 years and the importance of advocacy and the resources available to patients.
On 26 February, it was New Zealand’s turn for an in-person meeting in Auckland where patients and carers heard from local and international speakers Dr. Hilary Longhurst, Dr. Anthony Jordan, Dr. Karen Lindsay, a patient story and a fascinating talk on stress and lifestyle.
HAE Australasia is busy working on the next round of the “Living Well with HAE” video series for our website www.haeaustralasia.org.au. We are looking forward to posting the new videos on HAE with information from a gynecologist and genetic counsellor.
We are excited by the launch of the Elizabeth Macarthur Virtual Angioedema Centre (EMVAC). This virtual center is a pilot project with Dr. Connie Katelaris and HAEi. EMVAC is available to patients, healthcare professionals and others who want to make an appointment for HAE information and care. EMVAC services provided are one-on-one appointments with Dr. Katelaris, HAE nurses, clinical psychologists, and coming soon more access to more specialists to answer questions on HAE and support.
