From CEO Fiona Wardman, HAE Australasia:
HAE Australasia has submitted the ethics application to join the Global Registry in Australia. We hope to have a positive answer very soon so we can start rolling out the project around the country.
Once again this year, we attended the Australasian Society of Clinical Immunology & Allergy (ASCIA) Conference, where we had the opportunity to speak with doctors and nurses from around Australia and New Zealand, discuss our organisation and how we can help patients and their families.
Work is currently underway to update information and resources on www.haeaustralasia.org.
I was one of two patients invited to attend and facilitate workshops for physicians from around the world during the recent Takeda HAE Global Forum in Berlin, Germany.
HAE Australasia has set a date in early January to hold its strategy meeting. This meeting will enable the Board to discuss and plan the projects and initiatives for patients and their families for 2020.
The 2020 Global Conference travel grants for Frankfurt, Germany have been finalised. We are so pleased to have seven members from New Zealand and nineteen members from Australia joining us at the conference, making this the largest group from Australasia ever!
The HAE International map has been updated with a couple of HAE knowledgeable hospitals in New Zealand – have a look at https://haei.org/hae-membercountries/new-zealand/.