From CEO Fiona Wardman, HAE Australasia

HAE Australasia Youth Group is up and running, and the group facilitator Jess has done a great job in connecting some of our youth from Australia and New Zealand.  We would encourage more youth to join the group as we have some projects and a competition for them to participate in.

Due to COVID-19, HAE Australasia has had to put on hold a couple of the projects we were working on in the last few months.  We hope to get them progressing again very soon. But this has allowed us to work on some other plans and projects behind the scenes.

Patients in Australia are hoping to gain access to a new preventative treatment. Patients are providing their consumer comments to the decision-makers.

HAE Australasia is hosting a video for patients and their families on updates on HAE and COVID-19 with Prof. Katelaris.  During the video, a new and exciting initiative providing support services to patients and their families will be announced.

Well done to all the patients, family members, dogs, and friends from Australia and New Zealand who took part in the HAE Global Walk.  You’re all awesome! Thank you!!