From CEO Fiona Wardman, HAE Australasia:
HAE Australasia held a webinar for patients and carers in New Zealand with Dr. Karen Lindsay, Dr. Hilary Longhurst for physicians and research updates. The webinar was recorded and has been uploaded to our YouTube channel: https://youtu.be/DsdKUdTDHJQ.
One of our younger HAE patients from Perth, Western Australia, has shared her personal HAE story as a newly diagnosed patient. The story was shared through our social media and gained positive feedback from her family, friends, and our members.
A lot of hard work has been going on behind the scenes by Olivia (one of HAE Australasia’s Directors) on the website video project. An agency has been engaged, and the first video on mental health tips and tricks will be recorded in December. We look forward to being able to share the finished product with everyone.
HAE Australasia was included as a panellist for discussion with the Pharmaceutical Benefits Advisory Committee (PBAC), along with the Department of Health and key physicians to discuss HAE patients gaining access to one of the new modern treatments. The discussions were fruitful in helping the decision-makers understand how this treatment would be beneficial to HAE patients.
