2 March 2020 Fernanda de Oliveira Martins and Raquel de Oliveira Martins attended an event organized by Takeda called “A Blueprint for Success Brazil Summit”.
There days later Raquel took part in the event “V Rare Disease Scenario”, also attended by the Brazilian first lady, Michele Bolsonaro.
End April 2020, HAE Brazil (ABRANGHE) turned ten years. It all began in Orkut, Brazil with a talk about HAE back in September 2005. Four years later, in November 2009, a meeting with few patients, Dr. Anete S. Grumach and Henrik Balle Boysen from HAE International took place, and that was the start of a national member organization – and on 28 April 2010, the organization was formally created with 32 patients.
In commemoration of hae day :-) 2020, ABRANGHE organized an online meeting for HAE patients, in which GEBRAEH physicians answered questions. The meeting lasted two hours since everyone was really engaged. You can find the session at youtube.com/watch?v=nZXWOHSJeCA.
