For several months, HAE patients in Costa Rica have conducted interviews with the media to denounce the situation they are experiencing as the Government has not heard their claims. Several patients have been hospitalized with severe HAE attacks, one has been intubated to save his life, and according to HAE Costa Rica, three patients diagnosed with HAE have died from severe attacks. For the past years, doctors working for the Government have rejected the introduction of effective drugs for attacks, alluding that they did not recognize their effectiveness or that they were not used in first-world countries, despite the claim of specialist doctors in Costa Rica and the international community.
After numerous media reports, meetings with government officials, and a letter from the HAEi Board of Directors addressed to the Ministry of Health in Costa Rica asking for fair treatment and access to HAE treatment, new conversations with the Ministry have emerged to resolve the current crisis. We are hopeful that in a short time, the Costa Ricans will finally be able to have access to treatments that guarantee them a better quality of life.
In countries such as the Dominican Republic, Guatemala and Panama, representatives of the patient organizations and groups continue to work hard to achieve greater access to treatment. More doctors treating new patients with HAE have been identified.
Finally, more patients in Central America and the Caribbean use HAE TrackR, the new app to track your HAE attacks and have your personal log.
