From Regional Patient Advocate Michal Rutkowski
I organized and held Regional Workshops in Wroclaw and Lodz, Poland, during February.
Together with HAE Ukraine, I have been working on preparations for the national summit to be held in Ukraine – and along with HAE Belarus, I have worked on the concept and schedule for the immunology conference/workshops in Belarus.
Contact has been made with an immunologist in Riga, Latvia who is interested in HAE. And I am happy to report that Latvia has most recently joined HAE International as member country no. 85.
Some discussions on collaboration have taken place with Takeda in Belgium to help patients in this country.
The HAEi Middle East Regional Workshop took place in January in Muscat, Oman which brought together patients and caregivers, physicians, and pharmaceutical representatives. Keynote speakers, including knowledgeable physicians from the region, presented on the science of HAE. Patients had the opportunity to present their personal stories, which were well received and educational. Other sessions included focusing on advocacy and awareness of HAE. The meeting was a great success in helping to understand HAE in the Middle East.
I also attended and presented at the 2020 Emirates Allergy and Clinical Immunology Interest Group in Abu Dhabi in the United Arab Emirates.
Although the countries are not a member of HAE International, ACARE Centers have been registered in Oman and Saudi Arabia. Contact information can be found at our overview of the HAE Interntional memeber countries.
