From Regional Patient Advocate Natasa Angjeleska:
In Croatia, I have been assisting and advising the national patient group, which was officially founded on 29 February. HAE Croatia drew some media attention and appeared on several TV shows to explain HAE. They also held a session on Rare Disease Day, which was attended by physicians and patients. HAE Croatia has teamed up with the Rare Disease Alliance in Croatia to build on its capacity to advocate.