From President Mihaela Šogoric and Željka Kardum, HAE Croatia
Upon the initiative of a group of patients in Croatia, the founding assembly of patients with HAE was held in the DVD home in Semeljci on 29 February 2020. The need to establish an association was recognized for a longer period because of the problems with non-recognition of symptoms in patients with HAE that are often confused with allergies, but also the inadequate access to treatment for HAE patients across the country, thus a need to increase the awareness about HAE with both doctors and the general public.
The founding assembly was attended by patients from all over the Republic of Croatia, doctors from KBC Osijek, family members and several locals together with the mayor.
Mihaela Šogoric was elected President of the association, Davorka Grbić from Petrinja was chosen as Vice President, and Saša Pavlić from Rijeka was elected Secretary.
A special thanks was announced to all who contributed to the realization of this gathering, especially Mayor Grga Loncarevic, DVD Semeljci, the parents’ association Sunce (Mrzovic), the association Duga (Semeljci), the coffee bar Phoneix (Semeljci), the baker shop Docaj, the hunting association Srndac (Kesinci), the department of clinical immunology and allergology from Osijek, the Kick band for the party, all the friends and family members without whom it would not be possible to realize this great project.
The 2020 hae day :-) was marked in Osijek, Croatia. Members of HAE Croatia, along with physicians from the University Hospital Osijek and General Hospital Šibenik were gathered in front of the Osijek bridge, which glowed purple, to raise awareness about HAE. The event was covered by the media, and the emphasis on timely and accurate diagnosis and treatment for HAE was placed.
