From Rashad Matraji, regional patient advocate, Gulf Region and Middle East
Together with a Lebanese doctor Rashad has been working on a meeting leading up to the WAO Inter-national Scientific Conference in Beirut in April 2019.
In both countries Rashad has helped in identifying patients who have agreed to become the national HAE point-of-contact. Therefore, both Kuwait and Qatar have been added to the HAEi world map.
A Syrian patient with HAE in his family has been identified via Facebook – Rashad is working on developing more contacts. Due to the war there is no access to medication but together with a local doctor Rashad is trying to assist with information.
Rashad has located a number of patients. However, there seems to be no HAE knowledgeable doctors and no medication.