Initially, I am happy to inform you that the HAEi Emergency Room poster is now translated into Spanish, French and Arabic. 

On 5 December 2020, HAE Portugal (ADAH) held its annual meeting, this time in a virtual format. Around 45 participants took part, and Raquel Oliveira, the President of HAE Brazil (Abranghe) and I were invited as speakers. After a word of welcome from President Ines Pessoa, there was a scientific update with Professor Branco as moderator. Here four Portuguese doctors talked about updates on new HAE forms, diagnosis and clinical manifestations, long and short terms therapies, as well as new therapies and questionnaire results on Quality of Life. Then followed a presentation from Raquel Oliveira on the current Brazilian situation while I, among other things, presented some of the HAEi resources available to the member organizations. Ines Pessoa gave some ADAH data and updates of which we can highlight these: There are an estimated 205 people with HAE in Portugal, 40 members of ADAH and 30 hospitals with HAE modern treatment. Furthermore, the annual meeting included a presentation on self-administration. Here one of the nurses dealing with HAE gave feedback on self-administration using a video to show how to do it.

HAE France is in the initial phase of having its website hosted under the HAEi umbrella.

HAE Algeria has been quite active regarding visiting the Ministry of Health to create HAE awareness and try to improve HAE patients’ lives. The local authorities are now looking into the possibility of registering HAE modern treatment in the country. In February, HAE Algeria was on tv and radio and in newspapers to talk about HAE; this included some interviews with HAE patients.

Speaking of North Africa: I am still looking for some local contacts for pharmaceutical companies. Hopefully, I will have good news on this soon.

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