From Regional Patient Advocate Maria Ferron
Since holding a successful meeting with the North African countries in Algiers, I have introduced the HAEi Member Organization Code of Conduct to all the patient leads in all countries in my region. I also have been working with each country to nominate an Advisor for the Regional Advisory Groups. I have received excellent feedback from the first three questions, which will help me and HAE International understand the challenges and issues for each country.
I am also working on websites with a couple of my countries and setting up HAEi Connect.
Most recently my region has increased, as I am now also the Regional Patient Advocate for the United Kingdom and Ireland – I look forward to working with these countries as well.